by LouiseB » Fri Jul 24, 2015 10:48 pm
Syrinx C3-T10, congenital occult tethered cord - cut filum terminale 2007 ( I live in Spain, there is a great Dr in Barcelona who operated on me for 15,000 Dollars). Syrinx shrunk.
2010 grew again full length, long and skinny, symptoms all over the place, pain mainly in legs??? Neuro can´t tell me why. I stay home and don´t go out, activities even a lunch out increases pain. Been on all the drugs, they for work for awhile then dosage is maxed out and pain increases.
My son just turned 18 and off to university, I have been a single mum since he was 3, so I am free of responsibilities. I am thinking in throwing in the towel as it were, Quality of life is not pleasant. My Neuro wants me to give it another year to see if he can help me, but without my son I seem to have lost all need to keep trying. I think one night when the pain gets too bad, i will probably just pop to many meds. I have been close, but not intentially, just trying to get to sleep so pain will stop for awhile.
SM C4-T10, TSC - Release Sept 2007 as per Dr Bolognese advice. Syrinx shrunk. Symptoms the same.