surgery-- again!

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

Moderator: pmaxwell

surgery-- again!

Postby lcolangelo » Thu Feb 25, 2010 10:12 am

Well- we just got back from Iowa-- my 3 year old had to have his 2nd decompression-- while we were there we found out that my daughter also needs another decompression---her fourth! she has been suffering everday with debillitating headaches-- they did another MRI and found that the bone has grown back-- agian@!!!! We see Dr. Menezes one of the best in the country-- and he is never in a hurry to do surgery-- but feels she defineitly needs it again.. He said that it is very rare -- that out of 800 cases-- he has seen only 3-- (2 of them my children!) Lucky us! Just asking for thoughts and prayers-- surgery will be April 19-- thanks everyone!
Posts: 77
Joined: Fri Mar 21, 2008 1:50 pm

Re: surgery-- again!

Postby Dakota's Mom » Thu Feb 25, 2010 10:49 am

Praying, praying, praying! I really hope everything goes well with the surgery and recovery and hoping that this is the last one! Sending love and hugs!

Mom to Dakota (11)--Neurofibromatosis, SM (C2-T8), Left Thoracic Scoliosis, Seizure Disorder, Autism with Cognitive Impairment, Osteoporosis, Hypothyroidism, Untethering surgery 5/08
and Joshua (8)--happy, healthy, and supportive brother
Dakota's Mom
Posts: 62
Joined: Sat Oct 20, 2007 6:17 am
Location: Omaha, NE

Re: surgery-- again!

Postby razzle » Thu Feb 25, 2010 10:49 am

so sorry to hear that but You are in very good hands with Dr. Menenez R
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
User avatar
Posts: 1876
Joined: Thu Apr 30, 2009 4:55 am

Re: surgery-- again!

Postby memom » Thu Feb 25, 2010 11:39 am

Words cannot express how sorry I am to hear about your family. Our best wishes go out to all of you. Keep us posted on your prgress.

Mother of a beautiful 9 year old girl with CM 1.5, SM T 5-8 and Hypermobility. Decompressed 7/09.
Posts: 80
Joined: Fri Aug 07, 2009 5:25 pm

Re: surgery-- again!

Postby 3kidssane » Thu Feb 25, 2010 12:20 pm

My prayer's go out to you and your family.
Mother of: DD,8 with Cm 1 protruding tonsils 10mm and SM with Syrinx from t5-t7, 4 mm in depth and 5 mm in width, DC'd 2x 6/2010, DS, 4 with enviromental allergies, food allergies and autism,DS 2, DS 5 months.
Posts: 36
Joined: Tue Dec 29, 2009 12:56 am

Re: surgery-- again!

Postby Catherine » Mon Mar 01, 2010 10:18 pm

I'm so sorry to hear that you are going through this. I'll be praying for your family.

Posts: 31
Joined: Mon Mar 01, 2010 1:01 pm

Return to Pediatrics

Who is online

Users browsing this forum: No registered users and 2 guests