Poll the audience here!

Moderator: pmaxwell


Yes, hands/feet
Yes, other body part (please describe)
No, (itching my head wondering what you mean!:)
Total votes : 37


Postby mom2sonja&max » Thu Jun 26, 2008 10:21 am

Hey guys/gals,

I've have this itching thing with my hands and feet. It is so bad at times it drives me crazy!!!!

I thought it was from using the soap I had but I changed soaps over and over and it's not the soap.

I also saw a post from Janice where she mentioned she had it. That's when I posted her and she thought it would be an interesting poll, and so do I.

So.... who of you have had itching hands and feet (or other body parts for that matter) with no explaination? SM/ CM related?

Hope you all have a comfortable day!!!

Take care,
Mom to two beautiful babies adopted from China
Wife to great husband and father
tonsillar herniation 8.6 mm,DDD, Herniations C,T&L spine, Hemangioma T4 1cm, Fracture to T12,?OTC,brainstem in C spine
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Re: itching???

Postby Janice » Thu Jun 26, 2008 1:49 pm

Hi Tina,

I picked hands and feet because they are the most troublesome areas. However, there have been times when the itching goes all over and it's bugs the he$$ out of me.

Take care, great topic!!
GOD Bless!

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
Hemangioma's: T9-T11 & L4 (Copy & Paste link into your browser)
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Re: itching???

Postby Beverley » Tue Jul 01, 2008 1:13 pm

I use to get extreme itching of my hands and feet.
This happened on and off for about 8 years.
It was so bad that I would scratch till I would bleed.
I finally figured out that I have built up an allergy to perfume.

I no longer use colognes/perfumes, powders, lotions, soaps with scents.
I don't very often get the problem anymore. lol

Decompression Surgery Feb 8, 2008 w/Duraplasty & Laminectomy C-1&2
Cervical Disc Fusion 11/08 C5&6/6&7- Mild Disc Bulge L2-Focal Hemangioma
L2-L5-Lipoma 3mm L4&L5-Disc Bulge T11&T12-DDD
Dopa-Responsive Dystonia (DRD)
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Re: itching???

Postby tobeornottobe » Sun Apr 05, 2009 12:58 am

funny, i hadn't had this problem until this new soaps, detergents, lotions...but i itch everywhere and nothing i do seems to be helping...i had never heard this was a symptom...but when i saw this title, it made me wonder
CM 1 w/decompression & synthetic dura patch June 11, 2010 @ JHU
Chronic Migraines
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Re: itching???

Postby tlserenity » Sun Apr 05, 2009 1:52 pm

I have all kinds of allergies to different soaps etc....
So I use only certain types of soaps, detergents, and all.
Despite this - i still have at times insane itching
I think mine has to do with ACM and nerve problems from it.
Terry Lynne
*I am not my pain. I am not my past. I am that which has emerged.*
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Re: itching???

Postby amber4949 » Mon Apr 06, 2009 11:57 pm

My feet seem to be abnormally itchy, such that I will often have to slip off a shoe, even at work to scratch one. But, although it hasn't happened for a while, the weirder thing is with my hands. They will sometimes itch, but it feels kind of like it's under the skin, and nothing I do helps. Seems to happen the most when I fly, though definitely has happened other times.
Chiari Malformation: 1 cm
Syringomyelia: 7 cm (C1 - C5)
Decompression surgery scheduled: 2/24/09
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Re: itching???

Postby sarahjoparks » Tue Apr 07, 2009 11:24 pm

My daughters neck always itches she always asks me if she has a rash because that is what it feels like
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Re: itching???

Postby June » Sun Apr 12, 2009 5:57 pm

For several years I have had very bothersome itching across my back between the shoulder blades--very hard to reach. Wall corners and door jambs were favorite places if there was no one around to help. My daughter gave me a back-scratcher for Christmas one year, which I keep handy.

Then, 2 1/2 years ago, I got the SM diagnosis: syrinx at t6-t8/9. Right between the shoulder blades. Coincidence? I don't know. But I'm tempted to think there is a connection.

Recently, I have developed an itch on the right side of my right hand, which comes and goes. Same for my feet. Not big problems.

And as I sit here writing about itching, I'm beginning to itch all over.....
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Re: itching???

Postby rwfun » Wed Sep 02, 2009 11:33 am

I laughed when I saw this poll. Funny, I just told my husband last night that I had been itching lately at different places but I feel like I am scratching something on my body all the time....what is up with that?
Dx CM 5mm 8/19/09
Decompression surgery 7/2/10
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Re: itching???

Postby Janice » Wed Sep 02, 2009 8:32 pm

All my doctor said is that it's nerve related and to take Benedryl. Two of the docs said Benedryl is one of those meds you can take w/any other medications you might be taking. I started at 25mg's but now I'm up to 100mg's. It slowly looses it's effect then I have to increase the dose, always by 25mg's.

Take care,
GOD Bless!

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
Hemangioma's: T9-T11 & L4 (Copy & Paste link into your browser)
Posts: 4412
Joined: Wed May 30, 2007 6:44 pm
Location: Escondido, California

Re: itching???

Postby mommi007 » Wed Sep 09, 2009 11:31 pm

Itching at the back/bottome (base) of my head...I have always had itching there.
Chiari Malformation-0, Thoracic Syringomyelia, 2-3mm T1-T9 and "possibly Cervical too", "possible"-Ehler's Danlos Syndrome, Cranial Settling, Spinal Dysraphism (form of Spina Bifida)
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Re: itching???

Postby _Bri3249_ » Wed Apr 07, 2010 7:41 pm

I seem to get bad itching on my shins, to the point I start bleeding. :shock: Then I do notice it on my hands and feet sometimes.
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Re: itching???

Postby tmhall » Sat Jun 12, 2010 12:58 pm

Hi All,

Is itching a part of SM? I am newly diagnosed and have recently been itching a lot! Mainly my arms, behind one ear, and my neck. I would've never thought this would be something related to my SM.
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Re: itching???

Postby jfreema » Mon Jun 14, 2010 3:38 pm

I itch all over and get welts whenever something slightly touches me or when I scratch. I have too much histamine.
Pre-Op: SM C2-T4 (2mm C2 to C5, 6 mm C5 to T1, 2 mm T1 to T2, 7 mm T2 to T4), CM 8 mm
PFD surgery May 2010
Post-Op: Syrinx has completely disappeared - no evidence at all!
Surgeon: Dr. John Heiss at the NIH
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