by amber4949 » Sun Feb 08, 2009 5:39 pm
As I have not had my surgery yet, I do not have much information to share with you, Burntmedics, but I just wanted to say good luck and I"ll be praying for you. No one should have to go through this, but especially not a child. Hopefully the surgery will be successful and bring her a lot of relief.
Amber
Chiari Malformation: 1 cm
Syringomyelia: 7 cm (C1 - C5)
Decompression surgery scheduled: 2/24/09
NS - Dr. Heilman Tufts Medical Center, Boston, MA