loss of smell and taste?

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loss of smell and taste?

Postby loren67 » Wed Jun 13, 2007 6:17 pm

does anyone else have this?
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Postby mac » Thu Jun 14, 2007 12:54 am

Hi, Jenn,

I have noticed that when I am experiencing strong brainstem compression symptoms, it affects my sense of taste. Things just taste bad or have no flavor. I haven't noticed it with the smelling though.

What's going on for you?


Postby cash71 » Thu Jun 14, 2007 12:37 pm

My sense of taste is off, but mine is a side effect of Diamox. Are you on any meds that could be the culprit?
Be kind for everyone you meet is fighting a harder battle (Plato)

Syrinx C3-T9, CM zero, OTC, cranial settling, dysautonomia/POTS, and ?EDS

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Postby loren67 » Thu Jun 14, 2007 8:14 pm

so far they can't find an explanation. originally dr. b thought maybe thepulling down of my spine and brain from the tethered cord might be the culprit, but now, 9 months post op, still no taste or smell. according to my mri's my syrinx and herniation are unchanged after the surgery so maybe there's still hope.
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Postby mac » Fri Jun 15, 2007 6:01 am

Jen, I can't imagine living without the sense of taste and smell. I know you didn't need to lose weight to begin with, but have you lost weight b/c of this? How has your cooking fared? Any complaints from the family?

you poor thing! Have you done much research online? Do you have any brainstem compression going on?

curious mac

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