Upcoming kids surgery

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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Re: Upcoming kids surgery

Postby kater » Tue Feb 16, 2010 6:52 pm

Lucas is scheduled for surgery March 9 at Seattle Children's Hospital. It's hard to believe in October we were sure the MRI was going to be okay.
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Joined: Wed Jan 20, 2010 12:12 am

Re: Upcoming kids surgery

Postby shannon » Wed Mar 03, 2010 6:32 pm

Thank you for the cute little beanie baby and card. Owen really loves his new little beaver!! He wants to bring it to the hospital next week. I'll let everyone know how it goes.
Posts: 10
Joined: Tue Feb 02, 2010 10:59 pm

Re: Upcoming kids surgery

Postby itsme102376 » Sun Mar 28, 2010 5:16 pm

My 5 year old son Matthew will be having decompression surgery with duraplasty and possible laminectomy on April 14th.
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Joined: Wed Mar 17, 2010 9:43 pm

Re: Upcoming kids surgery

Postby tchappell » Sun May 02, 2010 2:01 pm

Our Son Barley Paras is having tethered cord surgery with Doctor Timothy Mapstone at OU Childrens Hospital in OKC, Ok. The surgery is scheduled for June 2nd, 2010. We are so very nervous! He also has been diagnosed w/ Arnold Chiari.
Posts: 20
Joined: Sat Apr 12, 2008 5:16 pm

Re: Upcoming kids surgery

Postby lhaight » Wed May 26, 2010 8:53 pm

My seven year old son Matthew will have decompression surgery in July. My husband had the same surgery 2 years ago. I need suggestions on how to explain what is going to happen. Anything you should tell them or not tell them? Thanks for any advice.
Posts: 12
Joined: Wed May 12, 2010 7:39 am

Re: Upcoming kids surgery

Postby Gina217 » Fri Dec 31, 2010 6:50 am

I never thanked you for Michael's beanie baby and card. He received his about 2 weeks prior to surgery and took it everywhere with him for those two weeks, took it to the hospital, and kept it with him during his whole recovery. It now sits proudly on his bed with all of his cherished stuffed friends. I cannot tell you how much it meant to him to receive something from another chiari kid. He is 11 years old and really understood that the child who sent it to him has experienced what he was going through and that meant everything to him.

I can't thank you enough!
Posts: 9
Joined: Thu Apr 08, 2010 11:15 pm

Re: Upcoming kids surgery

Postby Janicyas mom » Wed Mar 16, 2011 8:57 pm

My daughter, Janicya (pronounced ja-knee-see-ah) is 7 years old and is having surgery at Lucille Packard hospital / Stanford on March 18th. Please say a prayer for her.
Janicyas mom
Posts: 2
Joined: Mon Feb 21, 2011 10:56 pm

Re: Upcoming kids surgery

Postby allyking0827 » Thu Jan 05, 2012 11:52 am

Good morning everyone! My 4 year old daughter will be going in Monday the 9th for a posterior fossa decompression at Cook Children's in Fort Worth. Any words of advice would be greatly appreciated. Please keep our family in your prayers.
Posts: 1
Joined: Thu Jan 05, 2012 11:42 am


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