Need help with son (long, sorry!)

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

Moderator: pmaxwell

Postby hipmummyk » Tue Apr 08, 2008 10:23 pm

Thanks Gretchen! It's nice to hear that Dr.Oakes could be a viable doc to see here!

I took my son's MRIs to TCI and they said it does look like he has crowding in his posterior fossa. They want me to keep an eye on him and they are concerned about potential tethered cord with him because he dribbles pee regularly (always seems to have a patch about the size of a nickel on the front of his undies) and he sleeps in a fetal position.

So, I will keep an eye on him for now and if symptoms get worse, I will get him checked out.

Katie :)
CM1/Classical vs Hypermobilty Type EDS/many messed up discs in my back/no surgery for any of this...yet
Posts: 319
Joined: Tue Dec 25, 2007 5:45 pm
Location: Alabama


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