I have 2 kids with sm

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

Moderator: pmaxwell

I have 2 kids with sm

Postby gncrzy3 » Sun Aug 12, 2012 9:29 pm

I have sm c 4 to l1 and 3 of my 4 kids have also
Been diagnosed. Anyone else have multiple family
Members with it? I was told it was not genetic .. But
Obviously it wasnt by chance
Posts: 70
Joined: Mon Jun 25, 2007 11:23 pm
Location: western PA

Re: I have 2 kids with sm

Postby lsobczak » Sun Jan 20, 2013 7:07 am

I have 2 kids with SM. My girls were diagnosed at age 2 and 3 by MRI. I was also told that familiar SM is rare but here you have it. The girls are ages 7 and 9 now and doing ok. One has had surgery to place a SS Shunt and the other is just being monitored with yearly MRI's. Hope you kids are doing well.
Posts: 9
Joined: Fri Jan 01, 2010 7:56 pm

Re: I have 2 kids with sm

Postby pmaxwell » Tue Jan 22, 2013 11:24 am

Together We Can...
Posts: 153
Joined: Mon Jan 31, 2011 2:20 pm

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