Pain, solutions? + sores

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Pain, solutions? + sores

Postby prism » Tue Jun 19, 2007 9:43 am


I am wondering about dealing with pain. I've recently gone off Vicodin- and suspected that I have a problem with that drug causing more chest pain and more 'seizure' problems. Overall, I have felt that the long-term use of many, many different and powerful drugs has only confused and contributed to the puzzle of my health.

Therefore, I am reluctant to 'go on something new' or see a pain specialist. (the last one of those nearly killed me with his prescriptions)

I have read a good deal about those of you who simply rest when in pain and I have a hard time with that. I would gladly spend more time sleeping or resting but most often find I can not get comfortable enough to do so. With pain in my head I want to keep it still, but pressure on my spine or sides or front body hurts.

If I do fall asleep (with the help of the drugs I'm still on) during the day I wake up feeling like I'm drowning, or have been on a bad 'trip'.

I love the feeling of water for comfort, but often have a collapse of function in a bath, come uncomfortably close to swallowing water, need an hour to 'come back' functionally.

Does anybody have any ideas?

Finally, I was wondering if anybody else tends to break out with a sore where the pain is on the head? I tend to get stinging spots + sores -near the temple, behind the ear, base of skull and between the eyebrows and eyes.

:wink: prism

Postby Sandy » Tue Jun 19, 2007 10:00 am


Good luck with your pursuit. No way can I go without my meds. On the sores. I do get small ulcers in my mouth on the inside of my lower gums (painless) that are usually associated closely with time to take my B12 injection. I also occasionally get one of those in my eyebrow (always the right one). Almost like a fever blister but not.

My prayers are with you. Please don't try to be superhuman, take your meds as you need to, or change them.

I truly believe that SM/CM is only given to very strong individuals. And strong you are.

God bless.

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Postby razzle51 » Tue Jun 19, 2007 10:30 am

I dont know how long ago you got off Vicodin but sores and rashes are a side effect . Maybe it will clear up in time.

I am with Sandy dont suffer , if you need meds take them . And if you still suffer with pain see a Dr. Best wishes :wink:
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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Postby prism » Tue Jun 19, 2007 1:47 pm

hi, thank you for your replies! It helps me so much to be heard. :oops: I have been off of Vicodin for a couple of months now. I was going to do a re-try with Darvocet but it didn't get filled. It's so hard to get in to see my doctor... and the pain meds he's willing to prescribe only take the edge off, don't really help.

My husband would not be supportive if I went to a pain specialist.. and he would be even less supportive of my taking more medication. I am a grown up now though... :roll: He sees my efforts to make plans to go to TCI without him- so I will give these things more thought.

prism :wink:

Postby specialmomx2 » Tue Jun 19, 2007 3:14 pm


I was wondering if you have seborrheic dermatitis? The areas you mention are where it most commonly occurs. It often occurs in people with neurological disorders -no-one knows why. ... itis&gbv=2

If you think this is the problem, you can see a dermatologist about it. I was prescribed a special shampoo, and it cleared it up. ;)

And please let me know when you are going to TCI. I live right near there, and would love to meet up if possible. You are the closest person to me; - SX-wise that I have met on the Net.

"idiopathic" SM T3-T5 taking 50% of available space. Ehlers-Danlos Syndrome, Cervical stenosis, DDD, metabolic issues including reactive hypoglycemia.

check out my blog:
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