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New to group

Postby melmillMI » Fri Aug 29, 2014 3:59 pm

Hello To All,

I was recently diagnosed with Type 1 Chiari last yr Oct. 2014. I have researched a lot, and cannot believe how much there is to learn about this. After I was finally diagnosed and have a reason for all my health problems. I am 45 and my problems started when I was 15, I was beginning to think this was all in my head, as all doctors would give me a pill and have an easy answer.

I just had an MRI of my right knee and back, last Thursday I had knee surgery, I also have bulging disks, spine curvature and bone spurs, so Sept 13th I am scheduled to go for another Brain and Neck MRI. (I also have a tear in my neck) I have had surgery for nerve damage on my foot, ( called Morton's Neroma) and right shoulder surgery also a tear. Still have arm and hand numbness. Dr believes my spine curve ( onset of scoliosis) and bulging disks are from the Chiari. Praying that's not the case and they are able to fix my back. I do take Proprponoly 160mg now ( they increased dosage from 80) for headaches helps some, and also take shots for migraines, as well as sleeping pills for insomnia.

I am in Michigan and doing what I can to start a support group. Please feel free to reach out anytime.

Melissa :P
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Joined: Thu Aug 28, 2014 11:12 am

Re: New to group

Postby marymac » Fri Sep 05, 2014 4:21 pm

Welcome, and good luck with getting a support group together. This one is pretty fine, altho we have "quiet" periods, and are also on FB.
Central disc herniations C5-6 and C6-7, extensive syringohydromyelia cavity throughout the cervical & thoracic cord (large syrinx from C6 inferiorly.)

"Every day is a gift: Thats why it's called the Present"
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