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Support Groups

Peer support groups are a beneficial way for those affected by SM and/or Chiari to share with others who understand their unique situations. If you would like to join a local support group, contact one of group leaders listed below. These support groups are not monitored or regulated by ASAP.

Updated: 4-08

 

United States

Arizona Area

Shelley Norris

Phoenix AZ 85044

480-893-3951

wnorri@msn.com

or

Debbie Juengel

deblj@cox.net



Alana Volding

Scottsdale, AZ 85250

480-990-8697

avolding@aol.com

Kansas & Missouri Area

Jayne Link

12503 Lower McDowell Creek Rd

Manhattan KS 66502

785-776-5392

prairielink@prodigy.net

and

Sheila Rainey

23729 Highway 98

Boonville MO 65233

Greater Cincinnati Area

Ray D'Alonzo

8700 Mason-Montgomery Rd

Mason OH 45040

513-622-1977

dalonzo.rp@pg.com

Iowa Area

Sheryl Andre

1714 Douglas Ave

Ames IA 50010

515-233-4292

sheryl.andre@gmail.com

Ohio Parents with Children with CM/SM Support Group

Sherri Ketchesin

Email:

ketch16@yahoo.com

Kentucky Area

Jean Kinsey

307 Hodges Lane

Brooks KY 40109

502-955-6417

mjkinsey@alltel.net 

 Ohio Area

Karen McCann

1365 Bellefontaine Ave

Marion OH 43302-7011

740-383-4363

klmpsm@aol.com

 

Maryland Area

Nancy Young

1581 Charleston Dr Ct L

Edgewood MD 21040

410-538-4521

Michigan Area

Cindy Dellamater

10299 Oak Rd

Otisville MI 48463

810-631-6775

Hogan810@cs.com

Tennessee Area

Stephanie White

820 Roy Donegan Rd

Dickson TN 37055

615-740-0202 


Midwest

Julie & Jade Carter

5649 Roundup Road

Billings, Montana 59105

whutsnext@earthlink.net

(406) 252-7343

Minnesota/Western WI 

Midwest ASAP Connection

Judy Hunt

Judy_Hunt@ASAP.org

763-795-9980

 


Washington

Michele McGraw

Syringomyelia Northwest Support Group

Edmonds, WA

michelelm@verizon.net

(425) 742-0982

 


New Jersey

Southern Ocean Jersey Chiari Support Group

Christine Marchesano
Little Egg Harbor, NJ
609-812-0515

christine@marchesano.org

 

Pennsylvania Area

Marilyn Kilbourn

108 Moyallen St

Wilkes Barre PA 18702

570-675-1835


Renee Tobias and Melissa Ruth

The Children's Clinic of Wyomissing

Wyomissing, PA 19610

mruth@chiaripeople
ofpa.com

610-413-3259

 

Sacramento, CA Area

Lisa Yates

9411 Ottomon Way

Orangevale CA 95662

916-214-3839

destinyclergyservices
@yahoo.com

 

San Antonio/Houston, TX Area

Susie Brasseal

P. O. Box 859
Cypress, Texas  77410-0859

281-246-1909

(leave message)

sbrasseal@aol.com

or

Texas4ASAP@aol.com

 

Southeast Area

Pam Holmes

112 James St

Ozark AL 36360

334-445-0760

pamjh@charter.net

 

International

Irish ANTS, Irish 

Gena Scott 

Milmore House 

Aughamullen Castleblayney CO 

Monahgan, Ireland

Netherlands

SPV

P.O. Box 378

5140 AJ Waalwijk

Netherlands

Chairman: Ad Wartenberg

info@syringomyelie.nl http://www.syringomyelie
.nl

Canadian Syringomyelia Network

Barbara Forrestall

69 Penny Crescent

Markham ONT L3P 5X7

Canada

905-471-8278

csn@passport.ca

 

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