FOR IMMEDIATE RELEASE
Contact Cathy Poznik (330) 425-8476
October 12, 2005
or (330) 573-5560
LOCAL FAMILY HOSTS CLEVELAND AREA ASAP COMMUNITY FOUNDATIONS EVENT
NOVEMBER 4
No-cost event open to the public
The Poznik family joins the American Syringomyelia Alliance Project (ASAP) in hosting the
CLEVELAND AREA ASAP COMMUNITY FOUNDATIONS EVENT in Twinsburg, Ohio on
FRIDAY, NOVEMBER 4, 2005.
- 6:00 p.m. - 7:30 p.m.
- Friday, November 4, 2005
- Hilton Garden Inn, 8971 Wilcox Drive, Twinsburg, Ohio
- No cost
ASAP is a not-for-profit organization committed to improve the lives of persons affected by
Chiari malformation, syringomyelia, and related disorders while we find the cure.
Cathy and Jim Poznik's 11-year old son has Chiari malformation (CM) and syringomyelia (SM).
After multiple surgeries, his condition is still unstable and his future is uncertain. As children
with Chiari/syringomyelia grow into adulthood, they may:
- face further operations,
- experience neurological and motor impairment,
- suffer from severe headaches, dizziness, and chronic, unremitting pain.
Even with advances in diagnosis and therapy, there is no cure for CM or SM. Once considered
rare, research now indicates that 250,000 Americans have one or both of the disorders.
Committed to raising awareness and funding research for CM and SM, the Pozniks invite those
who are affected by the disorders, their families and friends, as well as persons and
corporations* interested in helping advance this worthy cause to the CLEVELAND AREA
ASAP COMMUNITY FOUNDATIONS EVENT.
- ASAP's vision for the future: Education, Research, and Support
- Testimonials from children
- Opportunity to support ASAP
- Opportunity to get involved locally and help start a support group
*Call Cathy at (330) 425-8476 or (330) 573-5560 about corporate sponsorship for this event.
Help improve lives!
Established in 1988, American Syringomyelia Alliance Project, Inc. is a national 501(c)(3)
nonprofit voluntary health organization dedicated to serving those who are affected by Chiari
malformation, syringomyelia and related disorders and to finding a cure. With approximately
4,200 members in the U.S. and abroad, American Syringomyelia Alliance Project, Inc. is
recognized as the leading source of reliable information about CM and SM.
Please contact Cathy at (330) 425-8476 or (330) 573-5560 for reservations or more information
about the CLEVELAND AREA ASAP COMMUNITY FOUNDATIONS EVENT.
For more information about Chiari and syringomyelia or to make a donation, visit the ASAP
web site at www.ASAP.org or call 1-800-ASAP-282.
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