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Since then ASAP has become a nationwide clearinghouse for information regarding Chiari (CM) and syringonyelia (SM) and related disorders. ASAP sponsors an annual medical conference linking the top medical professionals in the field with those affected. ASAP reviews and funds research annually. In addition, they promote awareness by hosting community fundraisers throughout the nation. Together with its membership, ASAP works toward fulfilling its mission to improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the
cure.
Our Vision
We envision a world without the devastating effects of syringomyelia , Chiari Malformation and related disorders.
Our Values
Customer Focus: Our attention and service is aimed at all our stakeholders. Of primary importance are those people affected by
syringomyelia, Chiari and related disorders, which includes persons and their families affected by the diagnosis as well as health care and scientific
professionals.
Hope: ASAP will find a cure for syringomyelia and Chiari.
Credibility: ASAP was the first organization people could go to for support and reliable information specifically about syringomyelia and
Chiari. ASAP's history since 1988 speaks for itselfwhen a person lives with the daily challenges of SM/CM, ASAP will continue to be
there.
Integrity: An unwritten moral code guides the organization in truth and
honor.
Communication: We provide clear, open channels in which to correspond, be it in person, by phone, by mail or by email. We will, at times, initiate such correspondence. We will always respond to such correspondence.
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