Disorders
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Parent Resources
We have compiled a list of web sites and resources that you may find helpful. When you click on these links, you will be leaving the American Syringomyelia & Chiari Alliance Project (ASAP) web site. ASAP is not responsible for the content or accuracy of information found there, nor do we endorse any of these sites.
Chronic Pain:
These sites provide information on issues pertaining to pediatric chronic pain.
Disabilities/Educational Rights
There are many federal laws which protect those with disabilities. These sites contain information about disability and educational rights that may pertain to your child.
- My Child’s Special Needs/Disabilities at Ed.gov
- Comprehensive Disability-Related Information and Resources
- National Dissemination Center for Children with Disabilities
- IDEA: Individuals with Disabilities Education Act 2004
- Frequently Asked Questions about Section 504 and the Education of Children with Disabilities
- Wright’s Law Special Education Law and Advocacy
- Pacer Center- Parent Advocacy Center for Educational Rights
- FAPE - Family and Advocates Partnership for Education
- What You Should Know About Assistive Technology
- LD Online- Information on Learning Disabilities an ADHD
- National Center on Learning Disabilities
- Learning Disabilities Association of America
- CHADD- Children and Adults with Attention Deficit/ Hyperactivity Disorder
- A Parent’s Guide to Response-to-Intervention
- National Parent Center List- Find a center near you!
- Find a Special Education Advocate as well as other resources near you at Yellow Pages for Kids with Disabilities
- Brave Kids – Resource Directory for children with disabilities, chronic, life threatening illnesses and special needs
Chronic Illness
There are networking opportunities for children and teens to connect with others.
Flight Assistance
Many organizations provide free or reduced travel assistance to those in need.