Disorders
Local Support Groups |
ASAP has withdrawn me from a very isolated and depressed state. Knowing that you are not alone brings with it a level of healing and peace of mind I never imagined possible. ASAP has eased my mental suffering translating into making me feel better physically. -Karen, Tennessee |
United States Click on a state or country below to display information for local support groups.
Alabama
Southeast Area
Pam Holmes
112 James St
Ozark AL 36360
334-445-0760
pamjh@charter.net
California
Illinois
Kansas & Missouri
Jayne Link
12503 Lower McDowell Creek Rd
Manhattan KS 66502
785-776-5392
prairielink@prodigy.net
and
Sheila Rainey
23729 Highway 98
Boonville MO 65233
Minnesota & Wisconsin
Midwest ASAP Connection
Judy Hunt
763-795-9980
Judy_Hunt@ASAP.org
New Jersey
Southern Ocean Jersey Chiari Support Group
Christine Marchesano
Little Egg Harbor, NJ
609-812-0515
christine@marchesano.org
North Jersey Arnold Chiari & Syringomyelia Alliance
Marc Davis
midavis03@gmail.com
Monthly meetings held at
First Presbyterian Church of Boonton
513 Birch St
Boonton, NJ
Central New Jersey Support Group
Brian Murphy
Shrewsbury, NJ
732-383-8133
bmurphywalk@comcast.net
New York
Ohio
Karen McCann
1365 Bellefontaine Ave
Marion OH 43302-7011
740-383-4363
klmpsm@aol.com
Pennsylvania
Marilyn Kilbourn
108 Moyallen St
Wilkes Barre PA 18702
570-675-1835
Western Pennsylvania
Alana Ficco
trendzthesalonspa@comcast.net
Chiari People of PA
Reading Hospital & Medical Center
mruth@chiaripeopleofpa.com
trobias@chiaripeopleofpa.com
Tennessee
Stephanie White
820 Roy Donegan Rd
Dickson, TN 37055
615-740-0202
Arizona
Debbie Juengel
623-561-6906
deblj@cox.net
or
Shelley Norris
Phoenix AZ 85044
480-893-3951
wnorri@msn.com
Florida
Chiari Families of the South
Debbie Loomis-Earles
Grayton Beach, FL
850-585-3622
graytongirl@gmail.com
Indiana
Northwest CM/SM Support Group
Nancy Boyan
chiari1support@gmail.com
or
Cyndi Vanek
vanek4@comcast.net
Monthly meetings 1st Monday of the month 7pm
Center for Advanced Clinical Studies
200 East 89th Avenue
Merrillville, IN 46410
Maryland
Greater Baltimore Metropolitan Area
Matt Turmelle
(410) 692-6898
Matt_Turmelle@asap.org
Nancy Young
1581 Charleston Dr Ct L
Edgewood MD 21040
410-538-4521
Michigan
Cindy Dellamater-Preville
10299 Oak Rd
Otisville MI 48463
810-631-6775
Hogan810@cs.com
North Carolina
Support Group for parents of children with CM
Shane & Melissa Gray
336-376-0067
mow_er_racer@hotmail.com
Patrice Schaublin
585 747-9651
Durham, NC
patrices@nc.rr.com
Oklahoma
Tdivsa / Owasso
Teresa & Geoff Petersen
918-609-5961
TPETERSEN65@AOL.COM
Texas
San Antonio / Houston Area
Susie Brasseal
P. O. Box 859
Cypress, Texas 77410-0859
281-246-1909(leave message)
sbrasseal@aol.com
or
Texas4ASAP@aol.com
Washington
Syringomyelia Northwest Support Group
Michele McGraw
Edmonds, WA
(425) 742-0982
michelelm@verizon.net
International
Ireland
Irish ANTS
The Northern Ireland Self Help Group
4 Broughton Park, Belfast BT6 ODB.
(048) 90 800 948
OR
166 Battleford Road, Armagh BT61 8BX.
(048) 37 548 382
Canada
Canadian Syringomyelia Network
Barbara Forrestall
69 Penny Crescent
Markham ONT L3P 5X7, Canada
905-471-8278
csn@passport.ca
Netherlands
SPV
Chairman: Ad Wartenberg
SPV, De Graafschap 69
2904 XV Capelle aan den IJssel, Netherlands
voorzitter@syringo-chiari.info
http://www.syringo-chiari.info/