American Syringomylia & Chiari Alliance Project

Now you can purchase the 2009 Conference Notebook.  Thirty-four  lectures, PowerPoint slides, and question and answer sessions have been transcribed from ASAP's Chiari & Syringomyelia Conference (2009 Quest for Understanding).  All eight modules are included in this comprehensive notebook.   This incredible resource covers a wide range of topics pertaining to Chiari malformation, syringomyelia and related disorders from leading experts.  (Table of contents is reprinted below)

This year ASAP is offering the notebook in an affordable downloadable form. When you complete the purchase, ASAP will provide you with a link via email to download the notebook.  No waiting for shipping or processing, you can begin reading your Conference Notebook immediately, save it to your computer for later, or print a copy on your home printer.  A PDF reader such as Adobe is required.   Cost is $35.00 or if you prefer, order a printed copy from the office (printing and shipping costs apply).

Warning: The Conference Notebook is protected by copyright.  The downloaded file may not be transferred to another party.  It is a violation of copyright law.  

Table of Contents: 

MODULE 1: BASIC REVIEW OF CHIARI AND SYRINGOMYELIA

The Chiari Malformations: Definitions, Concepts and Treatments

Timothy George, MD---------------------------------------------------------------------------------- 1

Syringomyelia: Definitions, Concepts and Treatment

Bermans Iskandar, MD ------------------------------------------------------------------------------- 8

Questions and Answers Covering Basic Concepts

Panel of Experts -------------------------------------------------------------------------------------- 11

A Diagnostic Methodology for the Evaluation of Chiari I Malformation

Roger W. Kula, MD------------------------------------------------------------------------------------ 15

 

MODULE 2: ASSOCIATED CLINICAL PROBLEMS

 Audio-Vestibular Dysfunction Associated with Chiari I: A review

Burke Richmond, MD --------------------------------------------------------------------------------- 21

Sexual Dysfunction and Urological Problems

John V. Kryger, MD ----------------------------------------------------------------------------------- 27

Neuropsychological Issues

Bruce P. Hermann, PhD ------------------------------------------------------------------------------ 31

Rehabilitation and Independence

Michael Ward, MD------------------------------------------------------------------------------------- 37

 

MODULE 3: COMPLEX AND/OR CONTROVERSIAL PROBLEMS

Goals and Objectives for Complex and Controversial Problems

Bermans Iskandar, MD ------------------------------------------------------------------------------- 42

Occult Spinal Dysraphism and the Tethered Cord Syndrome

W. Jerry Oakes, MD----------------------------------------------------------------------------------- 46

Complex Chiari: to Fuse or not to Fuse

Arnold H. Menezes, MD------------------------------------------------------------------------------- 50

Scoliosis: Diagnosis and Treatment

James McCarthy, MD---------------------------------------------------------------------------------- 54

Questions and Answers with the Experts

Panel of Experts -------------------------------------------------------------------------------------- 59

 

MODULE 4: PAIN

 Pain Definitions and Mechanisms

Miroslav Backonja, MD-------------------------------------------------------------------------------- 63

Pain and Syringomyelia

Angela Mailis-Gagnon, MD --------------------------------------------------------------------------- 68

Questions and Answers Concerning Pain

Panel of Experts -------------------------------------------------------------------------------------- 73

 

MODULE 5: CLINICAL RESEARCH I

 Measuring Outcomes After Chiari Decompression for Syringomyelia

Nicholas Wetjen, MD---------------------------------------------------------------------------------- 77

Neuropsych Issues in Patients with Chiari and Syringomyelia

David Frim, MD ---------------------------------------------------------------------------------------- 83

Trends in the Surgical Treatment of Chiari I/Syringomyelia in North America: Results

Brandon Rocque, MD --------------------------------------------------------------------------------- 89

Genetics Research and Techniques: Review

Allison Ashley-Koch, PhD----------------------------------------------------------------------------- 93

Questions and Answers

Panel of Experts -------------------------------------------------------------------------------------- 99

 

MODULE 6: PEDIATRIC ISSUES

 Hydrocephalus and Shunts

A. Leland Albright, MD-------------------------------------------------------------------------------- 104

Incidental Chiari I in Children

Robert Keating, MD ----------------------------------------------------------------------------------- 109

The Patient and Family Experience to Hospitalization and Illness

Julie Auenson BS CCLS ------------------------------------------------------------------------------- 117

Questions and Answers

Panel of Experts -------------------------------------------------------------------------------------- 121

Ocular Manifestations of Chiari in Children and Adults

Michael Struck, MD------------------------------------------------------------------------------------ 126

 

MODULE 7: CLINICAL RESEARCH II

 MRI Research and Techniques: Review

Victor Haughton, MD---------------------------------------------------------------------------------- 131

Mechanical/Computer Models Research and Techniques: Review

Frank Loth, PhD --------------------------------------------------------------------------------------- 136

The Origin of Syrinx Fluid

John D. Heiss, MD------------------------------------------------------------------------------------- 142

Questions and Answers

Panel of Experts -------------------------------------------------------------------------------------- 147

 

MODULE 8: CENTRAL NERVOUS SYSTEM HEALING

 Epigenetics

Bermans Iskandar, MD ------------------------------------------------------------------------------- 150

Nervous System Regeneration and Repair

Raghu Vemuganti, PhD------------------------------------------------------------------------------- 154

Stem Cells

Paul Clark, PhD ---------------------------------------------------------------------------------------- 158

Questions and Answers

Panel of Experts -------------------------------------------------------------------------------------- 163