Mayo Clinic - YES or NO for Chiari, EDS III, and CCI?

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Mayo Clinic - YES or NO for Chiari, EDS III, and CCI?

Postby kris278 » Sat Jun 18, 2016 12:14 pm

The Mayo Clinic is obviously world renowned, but I've heard many mixed reviews regarding their ability/willingness to diagnose and treat Chiari, Ehlers-Danos III - Hypermobility, and Craniocervical Instability (CCI). Some people say Mayo is great at evaluating these conditions and others say they're not. I've also heard some say that Rochester is good, but Jacksonville is not.

Does anyone have any thoughts? Have you been to Mayo? Anyone out there that has some combination of Chiari, EDS III, and CCI?

Am desperately in need of some help and recommendations from those of you that may have been through this already.
kris278
 
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Re: Mayo Clinic - YES or NO for Chiari, EDS III, and CCI?

Postby razzle » Wed Jun 22, 2016 11:32 am

no Mayo in Rochester is not any good anymore .... where do you live , we can help find oyu some one....
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
Iowa
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Re: Mayo Clinic - YES or NO for Chiari, EDS III, and CCI?

Postby kris278 » Mon Jun 27, 2016 10:28 am

I'm spending the summer in Florida, but live outside New York City and will be moving to Boston soon. I have family and friends up and down the east coast, so location is less of a concern for me than finding the best specialist that's familiar with all three conditions. Thank you!
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