by Debbieducati » Tue Nov 05, 2013 12:03 pm
May be I should give a little more history. I also have another chronic problem (Gastroparesis) due to emergency surgery for an H-Pyloric ulcer in 2008. I have seen a handful of doctors for this. They do not know why my intestines don't function properly. So in turn my stomach holds onto food for over four hours and burns all the nutrition out of it before it gets to my small intestine.Then once in the intestines the food runs through too fast. So I only absorb 2% of what I eat. Like running on an 1/8 of a tank of gas every day. Because of this I have lost my job, no medical for over a year. I have tried so may different things. I go to acupuncture every week for my stomach and SM. This keeps the vomiting away and some balance issues. To prevent my migraines and spinal pain I see a chiropractor. I don't have as many ICP problems when I see him. I'm on no pain meds at all. 10 months ago I saw a Nutritionist. The blood and other testing showed I was suffering from malnutrition, she had never seen a case as bad as mine. Started a new diet program, I was improving very slowly with up and downs. They don't want to start magnesium because I'm in the (bathroom) too many times a day. I blend most of all my fruit and veggies in a Nutri-bulit three times daily. I don't eat any processed foods at all. I have spent the last two years more focused on this then my SM. My thoughts are if I improve my nutrition I can reduce some of my SM symptom's. After everything I'm doing my acupuncturist does not think it's diet. I hard to put into words what malnutrition has done to me for 4 years or so, and I do my best to understand the ups and downs.
I have done most of this over the last 1.5 years on my own because of no medical insurance, all out of pocket. Over $600 a month not including food. My husband is retired, (he had to when the economy took a crap), so he took a job that gives medical three months ago to help out. Bless him. We should get insurance any day now. I also just filed for SSD.
I want to thank you for all your imput. If any of you have any more advise. Please let me know. I really am struggling right now. All my SM symptoms have increased. Had my first ICP headache in 5 months. Also a very bad bladder infection lasting over 6 weeks. Twice in 6 months. I go to see the nutritionist on Friday, very expensive, but she is good. She did better testing the my gastroentrologist. Wish me luck. Oh I'm also looking for a new neuro, Dr.
Love to all Debbieducati
Love to all
Debbieducati
PTSM C5, C6