My name is Jenn and I have an 8 year old who has both CM and SM. He has gone through the first and second decompressions (18 months apart) and as of now is doing well.

I do have a few questions. Does anyone who has a child with cm/sm deal with bladder and bowel issues? My little guy is on ditropan for the bladder issues, but the bm accidenta are another issue. I just got off the phone with his ped and we are going to make sure he isnt constipated. But I wonder how many other kiddos out there with cm/sm have to deal with this??
Anything you may be able to add would be greatly appreciated.

I am looking foward to "meeting" you all. It is going to be nice to have a group of people to talk to that know whats going on, and to have the understanding that you cant find with people who don't deal with cm/sm on a daily basis.
Thanks again.
Jenn