ASAP Conference 2019 Agenda
Agenda (times, speakers and topics are subject to change)
Wednesday, July 24, 2019
6 p.m. Onsite registration – Conference materials pick-up
7 p.m. Welcoming Reception – Dinner Buffet hosted by ASAP
8:30 p.m. Support Groups: Break out Meetings – Patients, Parents, Friends & Family
Thursday, July 25, 2019
7-8 a.m. Complimentary Buffet Breakfast
8a.m. Welcoming Remarks
Eric Berning, President of American Syringomyelia & Chiari Alliance Project
8:15 a.m. Conference Opening Remarks and Program Overview
Erol Veznedaroglu, MD, FACS, FAANS, FAHA
2019 Conference Chair
8:30-9 a.m. Surgical and Nonsurgical Treatment of Chiari Malformation
Erol Veznedaroglu, MD, FACS, FAANS, FAHA
Global Neurosciences Institute
9-9:30 a.m. Establishing a Novel Neural Tissue Deformation Biomarker for Type 1 Chiari Malformation
Bryn Martin, PhD, University of Idaho
9:30-10 a.m. Chiari Malformation in the Pediatric Population
Tina C. Loven, DO, Global Neurosciences Institute
10-10:15 a.m. Q & A
Led by Erol Veznedaroglu, MD, FACS, FAANS, FAHA
10:15-10:30 a.m. Coffee Break
10:30-11 a.m. ASAP-Funded Chiari-Syringomyelia Surgery Prospective Multi-Center Trial: Final Report
Bermans J. Iskandar, MD
Department of Neurological Surgery
University of Wisconsin, Madison, WI
11-11:30 a.m. Clinical Management of Syringomyelia and Chiari Failures
Gerry Grant, MD, Stanford University
11:30 a.m.- Panel Discussion/Q & A
Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA
12-2 p.m. Break for Lunch
2 p.m. Afternoon Session begins
2-2:30 p.m. Craniocervical Instability
Paolo Bolognese, MD
2:30-3 p.m. Associated Disorders: Cranisynostosis, Pseudotumor cerbri, EDS, Hydrocephalus, Tethered Cord, Neurofibromatosis, Epilepsy
Timothy George, MD
Dell Children’s Medical Center of Central Texas, Austin, Texas
3-3:30 p.m. Long-term Outcomes of Pediatric Chiari I Malformations and Therapeutic Options for Treatment of Failures
Robert Keating, MD
Children’s National Medical Center, Washington, DC
3:30-4 p.m. Panel Discussion/Q & A
Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA
4 p.m. Adjournment
Friday, July 26, 2019
7-8 a.m. Complimentary Buffet Breakfast
8 a.m. Morning Announcements
8:15 a.m. Conference Opening Remarks and Program Overview
Erol Veznedaroglu, MD, FACS, FAANS, FAHA
8:30-9 a.m. Navigating Pain Management During the Opioid Epidemic
Natalie Gofman, Pharm.D, BCPS, BCCCP
Global Neurosciences Institute
9-9:30 a.m. Cranial Surgical Abnormalities
Robert Heary, MD
Robert Wood Johnson University Hospital
9:30-10 a.m. Thethered Cord Syndrome
Petra Klinge, MD
TC Rhode Island
10-10:15 a.m. Q & A
Led by Erol Veznedaroglu, MD, FACS, FAANS, FAHA
10:15-10:30 a.m. Coffee Break
10:30- 11 a.m. Spasticity in Chiari
Jill Farmer, DO
Drexel Neurosciences Institute
11-11:30 a.m. Pain Management for the Syringomyelia and Chiari Patient
Gene Salkind, MD, Holy Redeemer Healthcare
11:30 a.m.- Panel Discussion/Q & A
Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA
12 – 2 p.m. Break for Lunch
2 p.m. Afternoon Session begins
2-2:30 p.m. Research to Improve the Understanding & Treatment of Syringomyelia
John Heiss, MD
National Institutes of Health
Bethesda, Maryland
2:30-3 p.m. Strange Bedfellows: EDS, MCAS & POTS
Anne Maitland, MD
3-3:30 p.m. Chiari and Syringomyelia in Pregnancy
Roger Kula, MD
Chiari Center, NSPC
3:30-4 p.m. Panel Discussion/Q & A
Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA
4 p.m. Adjournment
Please join us for a Special Reception and Dinner celebrating
American Syringomyelia & Chiari Alliance Project’s 31st annual Conference
6 – 7 p.m. Cocktails and hors d’oeuvres
7 p.m. Dinner and Silent Auction
Saturday, July 27, 2019
7-8 a.m. Complimentary Buffet Breakfast
8 a.m. Morning Announcements
8:15 a.m. Conference Opening Remarks and Program Overview
Erol Veznedaroglu, MD, FACS, FAANS, FAHA
2019 Conference Chair
8:30-9 a.m. Fear of the Unknown: Handling Depression
Wei Du, MD
Drexel College of Medicine
9-9:30 a.m. The Use of Medical Marijuana for Pain Management
Dave Knowlton
New Jersey Health Care Quality Institute
9:30-9:45 a.m. Q & A
Led by Erol Veznedaroglu, MD, FACS, FAANS, FAHA
2019 Conference Chair
9:45-10 a.m. Coffee Break
10- 10:30 a.m. Memory and Cognitive Issues in the Chiari Patient
Peter Gliebus, MD
Drexel Neurosciences Institute
10:30-11 a.m. Panel Discussion/Q & A
Led by: Erol Veznedaroglu, MD, FACS, FAANS, FAHA
2019 Conference Chair
11 a.m. Conference Adjourns