Age

Poll the audience here!

Moderator: pmaxwell

What is your age or age of person with these disorders?

0-12
5
6%
12-19
4
5%
20-30
14
18%
30-40
24
30%
40-50
18
23%
50-60
14
18%
 
Total votes : 79

Age

Postby razzle51 » Fri May 25, 2007 1:12 pm

What is your age ?
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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Postby MEAJA1 » Fri May 25, 2007 1:37 pm

What happens after age 60? Do we vanish, die or what??
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Location: Birmingham, Michigan

poll

Postby razzle51 » Fri May 25, 2007 3:45 pm

I tryed to post over 60 but it wouldnt take it again. I give up. We run away
and hide :wink:
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

User avatar
razzle51
 
Posts: 3281
Joined: Wed May 16, 2007 2:25 pm

Postby Riley and Alex's mom » Fri May 25, 2007 5:51 pm

3 year old son CM, PTC, SPD
5 3/4 year old son CM, SPD
37 year old self CM, SM
72 year old mother CM

Unknowingly passed down Chiari and it got worse through the generations...

Rachel CM/SM
mom to Riley age 3 CM, PTC, SPD decompressed 10/05 (18 months old), Lumbar drain trial 2/06, LP shunted 3/06, LP shunt revisions 7/06, 8/06 and another one pending and Alex almost 6 years old, CM, SPD
Riley and Alex's mom
 

Age

Postby ocset1 » Sat May 26, 2007 5:29 am

Hi mid 30,s feel alot older sometines!
ocset1
 

editing polls

Postby razzle51 » Sat May 26, 2007 10:44 am

you cant edit a poll . Sorry !! :cry:
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

User avatar
razzle51
 
Posts: 3281
Joined: Wed May 16, 2007 2:25 pm

Postby MEAJA1 » Sat May 26, 2007 2:29 pm

I tryed to post over 60 but it wouldnt take it again. I give up. We run away
and hide


Oh Well! Sometimes the poll section as with many things has to be played with a bit before it fully functions.

Thank goodness I have a life, I don't have time to go from board to board daily (all hours of the day and night) looking for something to do. :lol:

I commend ASAP, the moderators and everyone else responsible for setting up this wonderful board for us to utilize free of charge. Thanks again moderators for all of your endeavors!
Last edited by MEAJA1 on Sat May 26, 2007 2:43 pm, edited 3 times in total.
-Mary
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Joined: Thu May 17, 2007 10:36 am
Location: Birmingham, Michigan

New to this forumn

Postby Phillyg » Sat May 26, 2007 2:32 pm

Hello everone.
I am new to this forumn.
So a beautiful day I wish on everybody.
I have Syringomyelia and shunts in my thorasic and
lumbar area.I was diagnosed in 1994 after years of no
Doctors knowing what was ailing me.
Sorry getting carried away...better slow down..Ha
I am 55 years old,married,one daughter and one precious
grandaughter who is 2 years old.
I reside in Ohio.
Philip
Phillyg
 

Postby MEAJA1 » Sat May 26, 2007 2:46 pm

Welcome Philip of Ohio

Sorry to welcome you under your present health situation but never-the-less we are glad to see you here.
-Mary
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Location: Birmingham, Michigan

polls

Postby razzle51 » Sat May 26, 2007 3:19 pm

yes I have a life too , if you dont you would go nuts . Glad I am still driving and volunteering . Sometimes you need to give yourself a little extra push to get going. Also TAI CHI is good. :P
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

User avatar
razzle51
 
Posts: 3281
Joined: Wed May 16, 2007 2:25 pm

Postby Ryzing » Sat May 26, 2007 3:36 pm

I'm 37 :D

Roz - Volunteering is good - we do it as a family as much as possible. My fav is bingo at the nursing homes! :wink:

Diane
Syringomyelia - C4-T12, Fibromyalgia, Scoliosis, DDD
"If you don't change your beliefs, your life will be like this forever. Is that good news?"
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Location: Berlin Heights, Ohio

Postby Rebecca Gentry » Mon May 28, 2007 7:33 am

My son is 9 years old and has CM and SM. He will have decompression surgery 3 weeks from today (June 18) Any suggestions for what to expect after surgery? Thanks Rebecca
Last edited by Rebecca Gentry on Thu May 31, 2007 9:42 pm, edited 2 times in total.
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Postby kdenni » Wed May 30, 2007 8:31 pm

Phillyg

I live in Columbus OH and have just recently been diagnosed with SM. Any Chance you live in Central OH? Do you have a neurosurgeon or neurologist who even knows what SM is? I am having a tough time finding one!

Actually anyone from OH could answer this! BTW I am 50
kdenni
 

Postby Rebecca Gentry » Thu May 31, 2007 9:38 pm

I'm sorry you haven't found a Dr. yet. I know this can all be overwhelming at times. My son was only diagnosed about 9 months ago. chiari connection international.com has a map of US Dr. I hope this is helpful. Rebecca
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Postby kdenni » Fri Jun 01, 2007 6:29 am

Thank you Rebecca. I will look into that.
kdenni
 

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