How old are you?

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How old are you?

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Total votes : 76

How old are you?

Postby razzle » Tue Oct 20, 2009 5:44 am

Checking everyone age to see who mostly gets chiari or finds out when they have it.
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
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Re: How old are you?

Postby Chiariblogger » Thu Oct 22, 2009 4:50 pm

I was diagnosed at 39 and turned 40 6 weeks after decompression hindsight, probably been experiencing symptoms for 5 to 6 years previously.
ACM (17mm herniation) SM C1 to C3. Decmpression Surgery April 2009.
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Re: How old are you?

Postby keggler » Fri Oct 23, 2009 11:52 am

Hello------I was 49 when Dx and 55 when I had PFD. I've had some problems most of my life, but a bad rear in MVA that started most of my problems.The Dr said it was whip-lass that caused the problems to manifest. I'am now 57,and i think Ros is about the same age as myself.

Later...GBWY... Jerry in Carolina...
"You are what you eat----and-----You are what you think"

"Be Good To Yourself"
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Re: How old are you?

Postby kellydf » Mon Nov 02, 2009 12:03 pm

I first found out that I had Chiari at age 20, after a very very severe car accident. Looking back, I did have some symptoms before the accident, but they really all showed up in force in the months following the accident... That was 7 years ago now!

decompression surgery 2004
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Re: How old are you?

Postby lori1218 » Thu Jan 14, 2010 4:36 pm

I am 48....Dx'd around 46.5
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Re: How old are you?

Postby Calintay » Sun Jan 17, 2010 2:51 pm

I am 29. Diagnosed right after my 29th birthday. Had symptoms for about the last 7 yrs
11/2009 Dx Chiari 1 Malformation.
Waiting for Neurosurgeon appt

Mother of 2 wonderful kids. Ages 8 and 3
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Re: How old are you?

Postby williesgurl » Fri Jan 22, 2010 10:01 am

Remember where you came from
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Re: How old are you?

Postby tinliz » Sat Jan 23, 2010 9:13 pm

I was diagnosed at 53 and had surgery just before the 54th. But I can remember symptoms dating back to grade school. They got progressively worse in my late 40's and after surgery for skin cancer I finally listened to my body and did something about the symtoms. I lucked out with a correct diagnosis of chiari the first time I visited a ns unlike many others who seem to go years without being correctly diagnosed.
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Re: How old are you?

Postby ScaredErica » Mon Feb 08, 2010 5:15 pm

35 dx at 35 symptoms for past 3 and half years no trauma or injury
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Re: How old are you?

Postby tiddbit » Mon Feb 22, 2010 9:00 pm

I'm 35 and was diagnosed almost exactly 5 years ago (Feb 2005).
Idiopathic SM C4-T1 and T2-T11. Cervical laminectomy C4 to T1 and duraplasty performed May 2005. Syringo-subarachnoid shunt Sept 2006. DDD in C-spine.
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Re: How old are you?

Postby Sarah in Paradise » Sun Feb 28, 2010 11:28 am


I'm now 56 - but acm was found 20 years ago per MRI in 1988 .

I'd had some symtpoms as LONG as I can recall = clearly present by kindergarten =worse during the next few years , things like walking uphill in elem . age was already difficult /and physicians couldn't figure out why in those days .

Let me add I do have EDS too = It's my best guess now it was mostly eds impacts I noticed ( and definitly EDS impacts that they did treat over and over = things like joint issues , also stuff related to the congential bottom of the spine issues that I did have surgery on three times before reaching 21 .

I was told later by TCI , UCLA ect neurosurgeons it can also be assumed my acm was worse before the lower spine surgerys ( problems found did go clear into the cord entwinement end of the spectrum ) ... they could really only guess at it ( and told me my acm is sort of a 1 1/2 acm about 10 years ago now = I've more recently seen that term 1 1/2 used in a journal article where it seemed to ME they were discribing a differant end of the acm spectrum than I do have = a bit confusing honestly .

For what ever worth it might have in trying to determine this 1 1/2 acm catagory - I did have a dermal sinus tract sort of problem / but no opening fully through to outside the skin = massive infection caused a big big goose egg sized lump =but nothing coming through until surgically lanced . - the problem did extend into the base of the cord area = nerve roots were entwined in some sort of "tumor " type tissue removed during the third surgery since the whole problem kept getting infected every year or so = and returning to a larger extent each time ./ = the doctor did NOT expect the problem he found ( pre mri = I don't think he realised at all it could have been immaged to his advantage prior to surgery through mylogram for example , he thought it was a very different =simpler problem going in .

Sarah in Paradise
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Re: How old are you?

Postby pseudotumor » Thu May 19, 2011 2:15 pm

Now 23, Dx at 15 due to childhood of severe headaches
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