*Upcoming Surgery Dates*

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Re: *Upcoming Surgery Dates*

Postby cheryl » Thu May 14, 2009 7:31 pm

Best of luck for a successful outcome , I will be thinking of you , love & hugs Cheryl :D :D
The best things in life --- are not things
N.S.W. Australia 53 years old CM,SM, syrinx C6-T2 disc rupture C6-7 disc protrotusions @ C4-5-6-7,haemangioma T1 ,spurring C5-6 foraminotomy(C6-7)April '05 Chiari decompression August '05
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Re: *Upcoming Surgery Dates*

Postby bkbamma » Sat May 23, 2009 4:17 am

Hi
I am scheduled for PFD surgery June 4th,09 here in Portland OR.
This will be my 4th surgery in 11 months and hopefully my last for some time to come :)
In addition to CM I also have Intracranial Hypertension with LP Shunt.
CM shows currently 6.9mm herniation and less then 49% CSF flow.
I will keep posted after surgery.
Bless you all!
Bev
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Re: *Upcoming Surgery Dates*

Postby donny » Tue Jun 02, 2009 8:38 am

Heidi will be having tethered cord release on july 2
Don
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Re: *Upcoming Surgery Dates*

Postby Eden** » Thu Jul 09, 2009 5:27 pm

Scheduled for a subarachnoid shunt laminectomy Sept. 8th. Wish me luck!
Jill 27 yrs old, married to the love of my life. Mother of the most beautiful girl in the world.Diagnosed with congenital SM, syrinx from C-4 to T-12. Shunt placement 9-8-09. T-7-8-9-10 laminectomy, Syrinx shrinking.
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Re: *Upcoming Surgery Dates*

Postby keggler » Sun Jul 12, 2009 6:26 pm

Hello to all-
----And to say my surgery was 12/07 PDF and I'm feeling great,rode by mountain bike to the store yesterday.Yes there is good outcomes,seems like we only read about the problems. Go into surgery with a great attitude,and expect it to be a success. Also saying a little pray doesn't hurt and done forget your Doctor.

YOU'LL ALL BE FINE!!!!
s
Later and ...GBWY...Jerry in Carolina...
"You are what you eat----and-----You are what you think"

"Be Good To Yourself"
.
CM1-S/M-Basilar Invagination
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Re: *Upcoming Surgery Dates*

Postby tpearson » Sun Jul 12, 2009 9:47 pm

Our 13 year old Grant had PFD with craniotomy and cervical fusion of c-1 and c-2 at the University of Iowa In Iowa City on March 31st. We are 3 months out and his headaches are significantly better. He is wearing a Manerva Brace 24 hours a day and has tolerated this well. His reflux is so much better and his food doesn't stick in his throat any more. He was dx with chiari one malformation last year. Will be wearing this brace until at least October. Thanks for this forum. I am happy to post positive news. God Bless. Toni
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Re: *Upcoming Surgery Dates*

Postby Tolarn » Wed Aug 05, 2009 5:12 am

NIH is removing a Bone in my Skull to increase flow around Chiari 1 malformation on August 17th.
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Re: *Upcoming Surgery Dates*

Postby bluebaby01 » Sun Aug 16, 2009 11:25 pm

My daughter Missy Van Why age 16 she has CM1 and is scheduled for her Chiari decompression on 9/10/09 @ shands in Gainesville Fl.
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Re: *Upcoming Surgery Dates*

Postby youngwife » Mon Aug 17, 2009 1:40 am

Rachael is having tethered cord release on Aug 25th. Thank you! :)
Homeschooling mom to 6 wonderful blessings from the Lord. ~ "Let no corrupt communication proceed out of your mouth, but that which is good to the use of edifying, that it may minister grace unto the hearers." - Ephesians 4:29
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Re: *Upcoming Surgery Dates*

Postby MommyToMyCuties » Mon Aug 17, 2009 1:43 pm

My daughter Natasha (7) will be having Postier Fossa Craniectomy (PFD)& C-1 Laminectomy on Sept 8th w/ Dr. Ellenbogen.
DD-Natasha-7yr old with 21.40mm CM
www.caringbridge.org/visit/natashalowery
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Re: *Upcoming Surgery Dates*

Postby MichelleW » Sun Aug 23, 2009 8:59 pm

I am scheduled for removal of a tumor and placement of a shunt at C3 to drain a very large syrinx, on Sept 9, 2009.

Please pray...
SM C1 to T8 15mm wide
Subarachnoid shunt 9/9/09 FAILED
Syringopleural shunt @T1-2 18/11/09.
Syrinx collapsed even more, revealing SUBARACHNOID CYST at T5/6
2nd syringopleural shunt planned for 11/2011
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Re: *Upcoming Surgery Dates*

Postby Freebird » Tue Aug 25, 2009 10:23 am

My husband Bill (Freebird) is having shunt surgery on Aug 31st. Please keep him in your prayers. Thank you.

~Dawn
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Re: *Upcoming Surgery Dates*

Postby pattip448 » Mon Sep 21, 2009 9:15 am

Matthew Phillips age 17 will be undergoing tethered cord surgery today at Foothills Hospital in Calgary Alberta.


Patti HEDS mom of Matt 17 with cm1 TC and HEDS and John 16 HEDS
Patti , (EDS), Mom of 16 yr old with TC and EDS 6.6mm cerebellar herniation, 15 yr old with EDS Hypermobile
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Re: *Upcoming Surgery Dates*

Postby joshhearne » Sat Oct 10, 2009 6:42 pm

I'm going in for my PFD and Laminectomy (C1) with Duraplasty on 10/21*. Will have Dr. Robert Jackson of Dallas Neurosurgical do the surgery at Presbyterian Hospital of Dallas.

*Edited: date was postponed a week.
Last edited by joshhearne on Thu Oct 15, 2009 12:32 pm, edited 1 time in total.
Josh

DX'd 9/23/09
PFD Surgery on 10/21/09, Craniotomy, C-1 Laminectomy and Duraplasty (own tissue)
24mm Herniation (CSF now good/normal)
C2-C6 Syrinx (Collapsed :))
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Re: *Upcoming Surgery Dates*

Postby Indigo » Thu Oct 15, 2009 12:20 pm

I'll be having pfd surgery Nov. 6.
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