My 4 year old son, Leo Joe, is scheduled for decompression surgery August 28. He has been diagnosed with chiari malformation and IIH (idiopathic intracranial hypertention). His father and I are very scared about what our little guy is faced with, but hope that he feels much better soon. I have been trying to find out info online, as we have not been told yet all the details of the surgery and what to expect. He is having the surgery done here, at the Cleveland Clinic. I am confident in his neurosurgeon's ability to help him, just don't know what to expect and am a little upset at the lack of information. When they called last week, they said it is going to be done laproscopically(?) and he will only have about a one inch incision. They are going to remove part of the occipital bone and c1 vertebrae. I don't know how long his hospital stay will be, what to expect afterwards, and how limited he will be. Please keep him in your prayers.. Thanks.