My son and playing hockey with a syrinx

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Postby Windy » Fri Nov 02, 2007 9:12 pm

Listen to the friends here in the forum and then give your son the information.. young man sometimes follow their hearts not their minds.... I too have SM and have lower back and hip problems and my syrinx is in the thoracic area T 2- T 10....My NL says watch out for car accidents as they could cause paralysis.. also no bumper car rides or roller coasters. The Dr.'s in general do not know enough about CM or SM to give you an OK for hard sports....If your son has SM then he needs to see someone who specializes in that ..Then if that Dr. says go ahead play then you all can rest easier. Dont just go by the average Dr... SM pain can be anywhere that the nerves go. My NL said my stomach and back pain are both from the SM as the nerves are stretched inside the spinal cord they become inflammed and send off pain to wherever they are compressed. Hoping you get this resolved......Windy
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Postby tnglitter » Sat Nov 03, 2007 10:16 am

I know this is a totally different situation from what my experience is, but the basic principle applies. My youngest daughter was dx'd at the age of 4 with JRA (Juevenile Rhuematoid Arthritis) and her doctor (a Pediatric Rhuematologist) told us NO SPORTS, NO RUNNING, etc. It was SO hard to keep her down as she wanted to do all those things - especially since her older sisters were both so into soccer. In her third remission (her freshman year of HS), her specialist said she could play soccer but to take it easy. Of course, the take it easy part was ignored, but she was thrilled to be able to run again and play soccer. (This was a little girl whom that same doctor told me years later she fully expected to spend her life in a wheelchair, she had JRA so bad.) Today, she's 19 and you'd never be able to tell anything was ever wrong with her joints.

I'm not trying to judge anyone in this situation, but until a specialist with tons of experience in a certain field said it was okey, I would NOT endorse my child playing a contact sport. I know that your son is older, but this is an extremely dangerous condition you're messing with. Please for your son's sake, and your sanity, have him seen by a NS familiar with CM/SM. Please.

Rhonda
T Spine SM T8-T12 (9 mm) Syringopleural Shunt & Laminectomy T10/T11 5 Jan 09
C spine Disc bulges/canal narrowing/DDD
L spine Spondylosis/DDD

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Postby Jerry80871852 » Sun Nov 04, 2007 2:07 am

Rhonda, Hey Northwest Arkansas, I'm Southwest Arkansas. And I'm surely glad your daughter overcome it. We had friend whose youngest daughter had this and never overcome it. She was a darling and had the greatest personality and was so cheerful.

Her parents were so good to her, I was amazed at how devoted her father was. By the time she was 10 she could no longer walk. The doctors had told them she would probably not live to graduate high school but she did, but finally in her 20's it got the best of her.

She bought a bumper sticker for one of his birthdays and put on the back bumper of his pick up truck, it said, "I work for a Jewish carpenter," he was a carpenter and song leader at church. Of course that refers to Jesus Christ. He drove that pickup truck until it fell completely down, them bought another truck that the bumper would fit on and drove that truck till he died. Now her older brother drives it saying that pickup will never leave this family and if it happens to the bumper will stay with him.
May the Lord Bless,
Jerry

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Postby jimhorn » Sun Mar 30, 2008 12:10 pm

Well my son, Brady, ahs just completed his 1st year in Junior A hockey in Canada. He has completed the year with no changes in the Syrinx ( according to the MRI and nuero testing). he did have a fracture of his nivicular bone in his wrist and is awaiting surgeery in Edmonton before he heads home to sunny So Cal. He is looking foward to sunshine not snow and cold.
He has inquires by Univ. of New Hamsphire and the Army hockey programs but next year will be the year he must shine if he plans to continue to play at a higher level of competetive ice hockey. We only had the opportunity to see him play 4 games and listen over internet radio to the rest of the games. His mom misses him dearly. It has been since August since we have seen him.
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Postby larmils » Sun Mar 30, 2008 1:09 pm

I am not sure if you were able to get him to any specialists concerning his sm but I hope you consider it...Someone with sm can have very serious problems...If not watched it can be very dangerous...I have sm w/ cm and my dr has told me about contact sports being very dangerous...I dont mean to put it this way but is hockey worth him dying on the ice or becoming paralyzed? They can be so very dangerous because they can effect so many nerves...Please find someone who knows about them....I spoke one of the better dr's that has the experience with them...I would trust him with anything I did my life....

Laura
Cm/Sm decompressed 3/07 BIH arthritis herinated discs DDD Scoliosis
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Postby Jerry80871852 » Sun Mar 30, 2008 9:03 pm

So true for those with S/M, the wrong lick can be so dangerous and put on in a wheel chair forever, perhaps ever worse.

And in the sport if ice hockey people receive brutal licks, its just a matter of time when the lick hits the right spot, but add to that all the strain ice hockey puts on ones back & spinal cord where the S/M is located, strain is and enemy to S/M.
May the Lord Bless,
Jerry

Joshua 24:15 "...choose you this day whom ye will serve...but as for me and my house, we will serve the LORD."
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Postby Janice » Mon Mar 31, 2008 3:23 pm

I have SM and my syrinx has remained the same size for the last 2 years. However, my symptoms have continued to progress and new ones develop over this time period. In less than a years time I went from a walker to a wheelchair. A lot has happened to my neurological functioning but my syrinx has not changed.

It is more important to observe signs and symptoms of dysfunction rather than the size of the syrinx.

Your son knows best what he can handle but please be aware that hockey can indeed cause additional trauma and strain on the spine. Be certain that he is not hiding his pain or any dysfunctioning in order to continue playing.

Take care and I wish him the best.
GOD Bless!
Janice

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
Hemangioma's: T9-T11 & L4

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Postby reedy » Tue Apr 01, 2008 6:18 am

and make sure he develops some other skills and interests along the way. If (or when) the bottom drops out for him he needs to be able to look to something new for his life. If he has put everything into hockey and does not have skills in something he can do while sitting down, his problems will be compounded.
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More updates to my son and playing hockey with a syrinx

Postby jimhorn » Fri Jan 23, 2009 8:32 pm

Hi just wanted to let you know my son Brady has completed two seasons in Canada playing Junior hockey at the highest level possible without disqualifying him for a college scholarship ( his goal is to play Divison 1 hockey and get an education ) His final year is being played right now in the best league in the U.S., he is playing for the Sioux Falls Stampede ( USHL ) in South Dakota.

Over the Christmas brake my son had 3 MRI`s one for a follow up look at surgery he had on his wrist at the end of last season, 2nd MRI to detect at hip ( labrum ) impingement injury from this season :cry: and the last MRI was to compare his original Syrinx with a a present look to see if the contact of hockey caused any changes. The Nuerologist indicated that the "bubble in the spine" in the present MRI showed the Syrinx is ever so slightly smaller after 2 years and suggested we take another look in about 5 years unless symptoms surface. He indicated that in his 30 years of observation here in So Cal he has NOT seen a Syringomyelia the size of my sons that is so small ever create any problems and has actually seen in SOME cases small bubbles like my son`s being absorbed by the body.

As of now we are delighted by the results and hope and pray he continues to have good luck. He has had numerous small injuries during season as expected in a collision sport like hockey. He has trained very hard in the off season with strength training, running, speed training, spin classes , stretching/yoga classes and none have seem to stimulate the Syrinx.
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Re: My son and playing hockey with a syrinx

Postby Ryzing » Sat Jan 24, 2009 10:36 am

Hey Jim!

Thanks for the update on your son - and congratulations to him for his success! You must be so proud.

I hope he continues to do well under the circumstances. I'm wishing you both nothing but the best.

Diane
Syringomyelia - C4-T12, Fibromyalgia, Scoliosis, DDD
"If you don't change your beliefs, your life will be like this forever. Is that good news?"
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Re: My son and playing hockey with a syrinx

Postby reedy » Sun Jan 25, 2009 6:08 pm

Thanks for posting. I have thought of your son and wondered how he is doing. Its great that he has been able to stay ahead of his syrinx and do so well at his sport.
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Re: My son and playing hockey with a syrinx

Postby jimhorn » Wed Mar 25, 2009 12:34 am

:( Well a bit of disappointing news about my son , Brady, had to quit his final Junior hockey season early due to pain. Thank God nothing related to the Syrinx! He had too much pain from a hip impingement. The team had just 6 more games left and playoffs and he just couldn`t take the pain any longer. He was taking 6 Alleve a day to handle the hip pain and I just didn`t want him to suffer permanent damage.

He will have surgery at the Mayo Clinic in Rochester Minn. next Wednesday. The doctors there deal with hockey players all the time so it is the best choice for him. Fortunately he is has qualified to have arthoroscopy to repair the small tear in the hip cartilage ( labrum) and shave down the head of the thigh bone that is rubbing on the hip causing the hip impingement. The recovery is about 3 months incl. rehab at which time he should be back to full contact hockey. This problem is caused by either his skating style or a anatomical problem.

Getting correct diagnosis is so important...my son had seen many Dr.s over the past two seasons regarding the hip symptoms and they all said he had sciatic pain from periformis syndrome and even a disc injury was suspected incl. an MRI was done to rule it out and of course we have in the back of our mind the Syrinx. The only doctor, Dr Joseph Mayo ( he practices in Orange County in So cal , he is a relative of the famous Mayo family that started the Mayo Clinic ) discovered it was his hip.

He will likely play college hockey next year for Boston U, U of New Hampshire or U of Conn. next year. He needs good SAT scores from his upcoming testing. Brady is very determined and will not give up. He says that the test of a man is not when a man is UP and things are going your way but when you are DOWN and what YOU DO with YOUR life when you are down. My son always says that your determinationto reach your goal is based on how much discouragement it takes to keep you from doing what you want you want to achieve.
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Re: My son and playing hockey with a syrinx

Postby adcolbar » Wed Mar 25, 2009 9:26 am

Jimhorn, I am right there with you in helping your son go after his dreams. My son received a scholarship from UCLA to play football. His freshman year the Houston Texans were scouting a guy who played across from my son in practice. Their eyes went from that guy to my son and they sent him a letter saying they hoped he would be as interested in them as they were in him when he graduated. His dream of being in the NFL had started long before that time and hours of working in the summers to make himself better and making sure his grades were at the top. He was a Redshirt Freshman, 6'8" 340 pounds lineman at the time he took a major hit. His offensive line coach said he did not expect my son to get up, but my son told them to step back and give him time. He continued to play on that injury until after the spring game. One week later, he was in surgery and after hours of surgery the surgeon came out and said it was not what he expected and there was literally a mass of broken bones balled together. Having let the injury go so long without care, it had become a disaster. The surgeon told us that his ankle could not take another surgery. That was it for me, because the chances of him not getting his ankle hit were zero. My son suffered with being away from home, being injured and his dream being torn apart all in one year, with a coach who only wanted his body until is was no longer of value. But guess what. UCLA paid for his education and he graduated. He started his own business and is now the biggest "personal" owned business of its kind in L.A. He has taken so much on the chin, but he is an outstanding person with so much success. I tell you this story because his dream was taken away and when it came down to it, after the depression, he picked himself up and applied all of that personal motivation he had applied to football to another avenue. Whether Brady plays his way into the NHL or has to call it quits, it is obvious he has the motivation to apply to his life in another area. Just maybe he will turn out to be a coach for the NHL or whatever he wants, but with that kind of self-motivation, he will be successful at whatever he does in life. Just transfer the motivation to something else and he will continue to be a winner, if he can no longer go forward to his dream. Sorry for the length.
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Re: My son and playing hockey with a syrinx

Postby adcolbar » Wed Mar 25, 2009 10:59 am

Jimhorn, I did not mention that it was my son's seventh surgery since High School on that ankle. Guess that makes a difference to your son, since they seem to think alike. All I was trying to say is that if your son chooses to sacrifice his body, then a lot is lost. But with his attitude, he will be very successful in whatever he chooses that will not jeopardize his body. Just a thought to you and your son. We know how dreams are torn apart at times and I am so stubborn, I fail to watch out for myself at times because I have the attitude of I can do it. Sometimes, that is to my demise. I try to think outside the box for my future now, rather than grieve the life I had prior to 2007 and with my body damaged, it is very hard to do. Best of luck to you and your son. Barbara
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Re: My son and playing hockey with a syrinx

Postby Jerry80871852 » Wed Mar 25, 2009 12:27 pm

I hope this doctor has diagnosed this properly. The only reason I say this, there have been many doctors in the past who have misdiagnose people with Chiair and or S/M. Many of these doctors do so while making the claim that neither Chiari and or S/M can cause a person to have any medical problems.

I recall one person on this very board, or I should say on ASAp's old board that is now gone who had surgery by her local NS 2 times, and he was wanting to do a 3rd surgery, and she had not had no reliefwhatosever from her 1st 2 sugeries. She went to a different NS and he informed her the problem was caused from S/M and until it was dealt with the problem would still be there.

This left her in a turmoil, not knowing who to believe, she went back to her 1st NS and asked him about S/M and could it be possible that the S/M was causing all of her troubles. His reply was no, S/M cannot cause this problem. She had completely trusted her 1st NS, and still did, but decided that with 2 surgeries she had not improved thus it was time to move on and went reluctantly with the 2nd NS diagnose, them after surgery she felt better than she had in years and was so disapointed in her 1st NS and all he had put there thru yet did not help her the least bit.

There have been others during the time ASAP has had a message who have had the same experience, I sure many here know of many such people and can relate them to you. And there may be even some of them still present, but many time after they are doing much better they move on and do not post on this board no loner. And its a common known fact that they're NS's, doctors, out there who will stand firmly on their thought, Chiari nor and or S/M cannot cause anyone a single problem. Many of these doctors will always blame the problems a person is having on something else, many of them will put people thru many useless surgeries trying to correct the problem, but in the end they just put that person thru much unnecessary pain and surgeries that cannot help them

As I said, I hope and pray your doctor is 100% correct, I hope none of your sons problems has come from the Syrinx and it never causes your son one single problem, but it is not something to play around with and ignore, it has caused many people major problems, including being paralyzed and or worse. Many of the people who have had major problems with a Syrinx and or Chiari testimony has been in post made on this very message board and the old ASAP's old message board, they're real life people dealing with real life problems. Best wished and I do hoe the outcome will be wonderful.
May the Lord Bless,
Jerry

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