All support group leaders are volunteers who either have these disorders or have a family member diagnosed. While it is their desire to offer support, spread awareness and make a difference in the lives of those affected, please keep in mind that they may not always be available to help. You can contact the ASAP office by email info@ASAP.org or call 903-236-7079. ASAP is greatly appreciative for the time and labor our volunteers give. Without them we would not be able to offer the many programs that are available.

ASAP brought me from a very isolated and depressed state. Knowing that you are not alone brings with it a level of healing and peace of mind I never imagined possible. ASAP has eased my mental suffering translating into making me feel better physically.-Karen, Tennessee

United States

Click on a state or country below to display information for local support groups

Alabama Chiari & Syringomyelia Support Group

New Group forming in Birmingham, Alabama
Contact:  Andrea Pekarek
Alabama_support@ASAP.org

Arizona
AZ Syringo & Chiari Support Group

If you would like to start a group
contact Patrice Schaublin
Patrice_Schaublin@ASAP.org

Bay Area Chiari/Syringo Support

SF Bay Area CA Support Group forming
Leader: Michele Raye

contact Michele if you are interested in attending meetings
Bay_Area_Support@ASAP.org

Colorado
No Group

If you would like to start a group
contact Patrice Schaublin
Patrice_Schaublin@ASAP.org

ASAP’s Connecticut Chiari/Syringo Support Group

If you would like to start a group
contact Patrice Schaublin
Patrice_Schaublin@ASAP.org

Florida
Orlando Area Chiari/Syringo Support Group

Jeni Adair
Orlando, FL
352-514-3669
jenicoonradadair@gmail.com

Georgia

ASAP’s Marietta GA Chiari/Syringo Support Group

Interested in starting a support group in Georgia?
patrice_schaublin@asap.org

Illinois
No Group

If you would like to start a group
contact Patrice Schaublin
Patrice_Schaublin@ASAP.org

 Iowa

ASAP’s Iowa Chiari/Syringo Support Group

If you would like to start a group
contact Patrice Schaublin
Patrice_Schaublin@ASAP.org

Indiana

Indy ASAP Chiari/Syringo Support Group

Lori Tutrow
Greenfield, IN
317-966-8708
email Lori

Maine
ASAP’s Maine Chiari/Syringo Group

contact Lisa Dunton-Roy
phone: 207-570-6428
Maine_support@ASAP.org

Massachusetts
ASAP’s North Central MA Chiari/Syringo Group

contact Patrice Schaublin if you would like to start a support group
patricia_schaublin@ASAP.org

Michigan

ASAP Michigan Chiari & Syringo Group

No group currently in this state

Minnesota
Midwest ASAP Connection

Judy Hunt
763-795-9980
judyehunt@comcast.net

Missouri

If you would like to start a group
contact Patrice Schaublin
Patrice_Schaublin@ASAP.org

New Jersey
Delaware Valley ASAP Chiari/Syringo Support Group

Sharon Sweeten
Landing, NJ
call 856-457-2085 or email Delaware_Valley_Support@ASAP.org
****

New York

Long Island, NY Support Group

Shananne Hutter
917-923-0608
nyasapsg@yahoo.com
*****

Common Ground Long Island Support Group

Ruth Williams
Common_Ground@ASAP.org

North Carolina

Patrice Schaublin
585 747-9651
Durham, NC
patrice_schaublin@ASAP.org

Ohio
Ohio Chiari/Syringo Support Group

If you would like to start a group
contact Patrice Schaublin
Patrice_Schaublin@ASAP.org

Oklahoma

Oklahoma City Support Group

Ann Humphries
OKsupportgroup@ASAP.org

Pennsylvania

ASAP Reading/PA Chiari & Syringo Support Group

Group Leader: Stacie Nein
neinemtexet@aol.com

ASAP’s Butler, PA Chiarians

Michael Salasky
Butler, PA
butlerpachiarians@embarqmail.com

Not holding monthly meeting at this time

ASAP’s Pittsburgh Chiari / Syringo Support Group

Sherry Hess
Phone
bjh_135@hotmail.com

Rhode Island
Rhode Island Chiari/Syringo Support Group

If you would like to start a group
contact Patrice Schaublin
Patrice_Schaublin@ASAP.org

South Carolina
ASAP’s Charleston Area Chiari/Syringo Support Group

Group meets in Summerville
contact Laurie Yeh
703-955-6453
yeh.laurie@gmail.com

South Dakota

ASAP’s Dakota Chiari/Syringo Support Group
New Group Forming
contact: Halley Lee at shlee@pie.midco.net

Tennessee
Chattanooga ASAP Chiari/Syringo Support Group

June Hyett
Hixson, TN
Phone: 423-240-5247
Email: TN_Support@ASAP.org

Texas
ASAP’s Greater Houston Chiari & Syringo Support Group

Eric Berning
Cypress, Texas
713-444-4716
Eric_Berning@ASAP.org
****

ASAP’s Central Houston Chiari/Syringo Support Group

Annie Chapman
Houston, TX
713-540-8823
Annie_Chapman@ASAP.org
****

Virginia
ASAP Blacksburg VA Chiari/Syringo Group

Rain Deskin
Blacksburg, VA
540-838-1309
rainforce81@gmail.com

ASAP Northern VA Chiari/Syringo Group

Sarah Chey
Springfield, VA
571-969-2924
sarah.m.chey@gmail.com

ASAP Hampton Roads VA Chiari/Sryingo Group

Wendy Ford
757-962-0333
wendylinkford@cox.net

Washington
Syringomyelia Northwest Support Group

Shoreline, WA
425-478-7814
Michelelm60@gmail.com

West Virginia
Huntington WV Support Group

New Group Forming
Angela Holley – call 304-638-3432 or email
WV_support@ASAP.org

Wisconsin
ASAP Madison WI Chiari/Syringo Support Group

Heidi Jagoe
Madison, WI
000-000-0000
asapmadisonwi@gmail.com

*****

ASAP Oshkosh Chiari/Syringo Support Group

Leader: Stacey Blankinship
Phone: 920-267-8075
Email: Oshkosh_Support@ASAP.org

International
Click on a country below to display information for local support groups.

Ireland
Irish ANTS

The Northern Ireland Self Help Group
4 Broughton Park, Belfast BT6 ODB.
(048) 90 800 948

OR

166 Battleford Road, Armagh BT61 8BX.
(048) 37 548 382

Netherlands
SPV

Chairman: Ad Wartenberg
SPV, De Graafschap 69
2904 XV Capelle aan den IJssel, Netherlands
voorzitter@syringo-chiari.info
http://www.syringo-chiari.info/