six yr old son- chiari decompression surgery

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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six yr old son- chiari decompression surgery

Postby evergreenmom » Thu Jun 12, 2014 1:33 pm

Hi All,

My six year old has had chair and syrinx for a while and we have been recently surprised that doctors are now recommending decompression surgery. Son seems to be having some symptoms now whereas before he was pretty asymptomatic as far as we could tell.!

Surgery will take place in August with Dr Ellenbogen at Seattle Children's... I would very much appreciate any input as to what post op will be like and how I can best support my little guy through this.

Thanks for your support
evergreenmom
 
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