pediatric neurologist referrals in California

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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pediatric neurologist referrals in California

Postby carinchapin » Mon Sep 24, 2012 2:13 pm

Hi, Our grandson had an MRI for an unrelated issue and was diagnosed with Chiari 1 in the process. Can anyone recommend a pediatric neurosurgeon in CA? We are in the Monterey Bay area. Thanks very much.
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Re: pediatric neurologist referrals in California

Postby pmaxwell » Tue Sep 25, 2012 3:55 pm

Check with the teaching hospitals in your area. Most Pediatric neurosurgeons should be familiar with Chiari. Ask questions, how many they treat, success rate, follow up with patients. Some will say they have a certain success rate but if they are not doing long term follow up, how do they know?

Lawrence Shuer at Stanford has been treating this for many years and has written papers, etc.

Jorge Lazareff takes care of the kids at UCLA

Hopes this gives you a starting point at least.

Patricia
Together We Can...
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Re: pediatric neurologist referrals in California

Postby carinchapin » Fri Sep 28, 2012 8:03 am

pmaxwell wrote:Check with the teaching hospitals in your area. Most Pediatric neurosurgeons should be familiar with Chiari. Ask questions, how many they treat, success rate, follow up with patients. Some will say they have a certain success rate but if they are not doing long term follow up, how do they know?

Lawrence Shuer at Stanford has been treating this for many years and has written papers, etc.

Jorge Lazareff takes care of the kids at UCLA

Hopes this gives you a starting point at least.

Patricia


Thanks very much for these names and advice. I appreciate your time.
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