Decompression and returning symtoms?

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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Decompression and returning symtoms?

Postby Beach4me » Thu May 31, 2012 8:42 pm

My daughter had decompression in 2008 and is now 17. She had immediate relief but lately some things have been coming up. Her symptoms are the headache in the back and front of head, back pain, fatiaque, seeing stars and neck pain. She had CM1 without syrnix. She had the MRI today and hopefully will have results tomorrow.

I was told that a do-over would not be necessary. Anyone have experience with symptoms returning?
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Re: Decompression and returning symtoms?

Postby lttutrow » Sat Jun 02, 2012 10:16 pm

How did the follow up MRI go? My kids both had the decompression in 2008, my son is 13 now, my daughter is 15. My son had both a Chiari and syrinx, my daughter had the Chiari. My kids had symptoms return at about the six month mark after their surgery, and after trying several things, they decided to do a spinal tap. They both have high icp, and so LP shunts were placed.
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Re: Decompression and returning symtoms?

Postby gunflint » Sun Jun 03, 2012 5:45 am

I always try to see the MRI right away. After all it's your MRI.
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