Preston saw a neuro-opthalmalogist last week and she stated that he has mild ptosis and is having issues with convergence insufficiency/exotropia. She indicated this could be related to the ACM1, the pineal cyst or to the genetic duplication he carries - only time will tell.
Anyone out there with ACM1 (and not the other stuff) have issues with either ptosis or convergence? I tried to look this up and didn't find anything specific.
Mom of 9 yo boy with Chiari I, Pineal Cyst, Microdup. Synd. 15q, Mito. Disorder, Ctrll. Sleep Apnea/Sleep Mvmt. Disorder, Asperger's, Hypotonia, Aphasia, GAD, OCD, occipital headaches, etc. Visit at http://caringbridge.org/visit/prestonbyrne