Updates

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Updates

Postby donny » Tue Aug 12, 2014 10:55 pm

Well as I posted a few days ago The chiari institue sent our mri's back with her medical records which I thought were useless to there facility. So I e-mailed them about this and they called my wife and yes they got the relevant information and said if we wanted another opinion to see Dr Bolognese. I e-mailed him cause I would think both him and TCI would diagnose tethered cord or any other issue related to the spine/brain the same or at least use the same methodology. Dr B wrote back and said he could probably help.
On The same note TCI informed my wife that he will be in his new office this friday.
Thursday, Heidi has an appointment to be checked for EDS or other connective tissue dissorders. Shes already been screened for a couple hours by a genetisist and now she sees a specialist in connective tissue dissorders. So hopfully things will start going in the right direction.
Take care
Don
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Re: Updates

Postby syrinx48 » Wed Aug 13, 2014 3:56 am

Thank you Donny to keep us updated! What a wonderful news for Heidi and you!

You are in my thoughts,

Annemarie
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Re: Updates

Postby donny » Fri Aug 15, 2014 9:14 am

Well shae saw the genetisist yesterday and she does have the clssical EDS. (hyperbobility, loose joints, easy bruising etc.) Although she really isn't very hypermobile everything else fits. she said she could do a blood test but its only about 50% accurate and she was 100% sure so no point in the blood work.
Take care
Don
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