by Dcuster » Tue Jan 15, 2013 10:02 am
Hi reedy, yes I am kind of excited to get to contribute in this study. Jeff will be here on Friday from Duke so we will see how it goes. The thing I am most excited about is, it's been over 10 years and I still have not found out rather or not I have CM. I know I have SM, had a shunt placed in 2003 for a rather fat syrinx it was 1.1 cm wide. My twin had a neck only MRI done and the radiologist mention low lying tonsils. To this day she has not had a full MRI of her spin to find out if she has a syrinx. She had one of the nerve stimulator's put in back several years ago and they could not do an MRI because of it. Now she has the machine out and can have one but now she can't get a Dr to order a whole MRI. I tell you the Dr's around here stink. But at least doing this study we should both find out rather or not we do in fact have CM finally. My twin and I tease and say we are going to right a book about how crazy (mentally) the Neuro Dr's really are. That it's not the patients that are crazy lol it's really the Dr's. anyways just joking and yes we are glad we get to do a small part to help out in the future for all the newbies that will come along after us.
SM t10-T12 2.5 x 1.1 cm in dia, thorasic shunt 2002,
Pineal Cyst, C5-C6 fusion 2005, Lumbar L2-L6 w/4 level fusion with hardware 2006, adrenal gland tumor, 7-8 thyroid nodules, 2008 C4-C7 Corepectomy with hardware.