Chiropractic Care?

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Chiropractic Care?

Postby stacy » Fri Sep 14, 2012 8:02 am

Hi, everyone. I was diagnosed 11 years ago with a syrinx in my cervical area. My latest MRI shows that it has since remained stable. (Whew!) All these years I've been unknowingly doing things that are not advisable for people with SM (running, chiropractic care, heavy weight lifting, spinal epidural for each delivery of my kids, yada yada yada). Since the syrinx hasn't grown, I'm confused about whether or not to continue seeing a chiropractor. I looked on PubMed for information and only came across an oddity of one chiropractic patient with SM getting paralyzed after an adjustment. I'm still in pain every day, guessing it's from the disc degeneration that's in the same area, and don't know what else to do for it besides chiropractic care. Is there more information somewhere else about the dangers of getting chiropractic adjustments with SM? Maybe there are adjustments the chiropractor can do that aren't dangerous for the syrinx? I asked several chiropractors in my area and none of them are familiar with SM.
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Re: Chiropractic Care?

Postby stacy » Wed Sep 19, 2012 11:45 am

Still researching, but so far I haven't found any concrete evidence that chiropractic is bad for SM. Been thinking about this more and it seems like chiropractic adjustments should actually be a good thing for a syrinx. Wouldn't the adjustment help release the CSF trapped in the syrinx?
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Re: Chiropractic Care?

Postby June » Sun Sep 23, 2012 11:27 pm

Stacy -- I'm surprised no one has chimed in here about chiropractic. We are all told to run far, far away from it as fast as we can, because it can do much damage. Please be careful, and DEFINITELY DO NOT go to a chiro who has never heard of SM and has no clue how to treat it. Actually, that's a good idea in general. Stick with the specialists who know what they are doing.

There has been much discussion on this Board on this subject. I'm sure if you search for it, you will find some good info to help you. But please be careful who you let touch your body. Ignorance can do a lot of damage.
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Re: Chiropractic Care?

Postby reedy » Mon Sep 24, 2012 9:20 am

Yep - what June said!
The likelihood of really big problems is not small with chiro - you are increasing your risk hugely, as you have people who are essentially unregulated doing things to your weakest point. Some chiros might be OK and provide useful services, some might be neutral, providing placebos (which can be a good thing in some cases, but isn't treating the problem, its treating the perception of the problem), and some are downright dangerous.

Search on the forum under chiropractic, chiropractry, etc. If the search function doesn't work, use Google to search the site, putting in your topic and the name of the site.

In the meantime, consider what evidence-based medicine has to say about the field of chiropractry in general. Read 'Bad Science' by Ben Goldacre (or read his blogsite, or watch his TED talk), 'Trick or Treatment' by Simon Singh and Edvard Ernst.....etc.
http://www.amazon.co.uk/Bad-Science-Ben ... ag=bs0b-21
http://www.badscience.net/index.php?s=chiropract
http://en.wikipedia.org/wiki/Trick_or_Treatment

I expect you might decide your money is better spent on a really good physical therapist plus massage therapist.
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Re: Chiropractic Care?

Postby stacy » Mon Sep 24, 2012 12:32 pm

Thanks, I will do a search here and look up the other links, too. I'm not 100% sold on chiropractic even though I've been seeing one since the accident, but my husband puts so much faith into them. I haven't gone to the chiro in 3 months because I just couldn't tolerate the one I was seeing (he does the neck twisting and it hurts me every time). My husband believes I am doing damage to my body by NOT getting adjustments. And it didn't help that my primary care doctor said chiropractic was okay for me. I was diagnosed with SM 11 years ago and just recently got a follow up MRI. I thought the new MRI would show progression of the syrinx and I could use that as proof to my husband that the chiro is bad for me, but the syrinx hasn't, only the disc degeneration has progressed. So now my husband is even more adamant that I see a chiropractor. I figure I would make a compromise with him and see this chiropractor I saw in the past who did applied kinesiology and not the neck cracking adjustment.

From what I've read online, the applied kinesiology is supposed to be quackery, but one of this chiro's visits actually had me feeling like before the car accident. It only got rid of the neck pain for a day, but it was a really amazing feeling after being in constant pain for years. I am also looking into visiting another chiropractor who does ultrasound therapy, but I read mixed reviews on this therapy so I don't know what to think. Physical therapy is something else I've looked into, but the expense is more than chiropractic. I'm down to looking at youtube videos, searching for that elusive exercise that will make everything better. :mrgreen:
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Re: Chiropractic Care?

Postby Debbieducati » Mon Nov 26, 2012 10:11 pm

I do beleive in some of the chiropractic care, I went off my pain medication 1year 6 months ago and the only way my migraines were releived was by chiropractic care. I could feel the rush of fluid leave my head instintly. That is one of the reasons I went off the medication. I see one every week and when I don't my pain level increases. Because I have no medical insurence right now I don't have too many choices, so I am very thankfull for the little releive I can get from chiropractic care.

Love to all
Debbieducati
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Re: Chiropractic Care?

Postby Donna L » Sat Feb 02, 2013 4:59 pm

Hi! I have not been on the board for several years, and was looking around today. I have to respond to this ?. I had chiropractic care before being diagnosed with SM. I would have the "neck twisting" and would get relief from headaches. I was diagnosed in 2005 with a cervical syrinx (C-2 - C-6, 4.6 cm X 1.3 cm) and had decompression surgery with a shunt placed in the syrinx. Now cervical adjustments are out! I do continue to receive chiropractic treatments monthly, including manual adjustments, ultrasound and electric stim. I also get massage therapy monthly. My chiropractor researched syringomyelia after my diagnosis, and I trust him completely. My syrinx has remained the same since my decompression, C-3 - C-5, 3 cm X 4 mm. I would not function without these treatments!! If it helps I will do it, and it helps.
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Re: Chiropractic Care?

Postby karenb » Tue Jul 02, 2013 12:07 am

Hi all,

Just chiming in...

Last visit to the Neurologist, I asked him about this. He advised nothing above L3, since it can affect CSF fluid pressure.

Based on previous experience, I found a chiropractor who uses an activator (no manual adjustments). He has been studying (and continues to study) SM, and he's extremely careful, following my Neurologist's instructions and then some.

He is definitely a lot gentler with my feet than the podiatrist is - nothing helps pain quite like taking two dislocated bones and giving them a good, hard "crack" to give new meaning to the word "pain". No wonder those tables they use are so high above the floor!

Karen
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Re: Chiropractic Care?

Postby pfb1977 » Thu Feb 13, 2014 10:24 am

I have a cervical syrinx but have scoliosis in my lower back and sciatica. My chiro doesn't adjust my neck but the adjustments help my lower back a lot. I have pain in my low back legs and hips that is relieved by this. I would not recommend any adjustments any where near your syrinx tho. myofascial release (deep tissue trigger point) massage helps with stiffness but hurts while it's being done cause they really get into any knots and I have tons
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Re: Chiropractic Care?

Postby Debbieducati » Thu Feb 13, 2014 12:13 pm

I have been told the same thing by a few doctors. Never have your neck worked on. So if I can not do this for my pain. Then what? I can not take pain medication anymore because I have gastroparesis too. I suffer from malnutrition daily, severe fatigue, Pain scale daily 6 to 8 daily. The pain in my gut is 24/7. It's painful to walk. My list of symptoms are 20 to 30 different things every day. I have managed all of this on my own for a little over 2 years now. No insurance, so seeing a doctor is hard because of money. I live in California and the health care is too expensive, I would not be able to eat. And eating is so important for me, I only absorb about 2% of what I eat.

So besides chiropractric and acupuncture, How do I get help for my pain?

Love to all
Debbie ducati
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Re: Chiropractic Care?

Postby birdlover3 » Thu Mar 13, 2014 10:11 am

Years ago, before I knew I had Chiari with a syrinx, I was going to a chiropractor. I was getting worse & I didn't know why. I quit going & my symptoms quit getting worse. My husband's chiropractor knows about Chiari & a syrinx. The chiropractor said he would not work on any person that has Chiari/Syrinx because he knows it can worsen it. For those that can tolerate chiropractor care, I envy you. Chiropractors used to help me so much, but now I stay away because their treatments worsen my symptoms.
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