shunt surgery tomorrow

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shunt surgery tomorrow

Postby MichelleW » Tue Nov 08, 2011 12:52 pm

I am off for my surgery early tomorrow morning.
I am having a syringopleural shunt placed to drain an arachnoid cyst on my spinal cord.

I will have hubby update everyone as soon as he can.
SM C1 to T8 15mm wide
Subarachnoid shunt 9/9/09 FAILED
Syringopleural shunt @T1-2 18/11/09.
Syrinx collapsed even more, revealing SUBARACHNOID CYST at T5/6
2nd syringopleural shunt planned for 11/2011
MichelleW
 
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Location: Moose Jaw, SK, Canada

Re: shunt surgery tomorrow

Postby gunflint » Tue Nov 08, 2011 1:59 pm

God's speed.
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Re: shunt surgery tomorrow

Postby wendi » Tue Nov 08, 2011 2:56 pm

Gool luck, Sweetheart, I feel for you. I hate that you have to go thru this again, and again. I do hope this one brings you the relief you need.

Take care,
Wendi
ACM 7.5mm B4 TCS 2.4mm post op
TC ,TCS @ TCI on 1/3/08,
chronic sacrolitis
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Re: shunt surgery tomorrow

Postby Sueli » Tue Nov 08, 2011 5:04 pm

Good luck, Michelle!
We are praying and rooting for you!

Sueli
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Re: shunt surgery tomorrow

Postby MichelleW » Wed Nov 09, 2011 6:51 pm

This is an update from Michelle's husband. Her surgery went very well today, according to the surgeon. They changed the plan a bit this morning with the surgical team deciding that they would try a slightly different technique that would mean only one vertebre would have to be damaged instead of three. Michelle was alert and awake several hours after the surgery, but is now sedated and drifting in and out of sleep. She was complaining of headaches when awake, which is being blamed on the pressure changes in the fluids due to the surgery. I will post more later if her condition changes.
SM C1 to T8 15mm wide
Subarachnoid shunt 9/9/09 FAILED
Syringopleural shunt @T1-2 18/11/09.
Syrinx collapsed even more, revealing SUBARACHNOID CYST at T5/6
2nd syringopleural shunt planned for 11/2011
MichelleW
 
Posts: 185
Joined: Thu Jun 18, 2009 12:09 am
Location: Moose Jaw, SK, Canada

Re: shunt surgery tomorrow

Postby *Hope* » Thu Nov 10, 2011 12:42 pm

I'm so glad to hear that she's doing OK after surgery. Sounds like the change in plans may have saved her some recovery time in the long run.

Hang in there, Michelle - we're pulling for you!
CM1
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Re: shunt surgery tomorrow

Postby Sueli » Thu Nov 10, 2011 5:41 pm

Thank you for keeping us posted and that Michelle made it safely through surgery! It sounds like that did a single laminectomy which is a much smaller incision and will be less sore during recovery! I hope her headache is easing and that they are keeping her comfortable!

Michelle really helped me a few weeks back before I had a smaller shunt surgery. It helped reassure me and she gave me a lot of support!

You are all in our thoughts and prayers!

Sueli
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Re: shunt surgery tomorrow

Postby toport20 » Sat Nov 12, 2011 3:56 pm

Best wishes Michelle!

Know you are not alone! We're all pulling for you and a speedy recovery!!!

Tracy
Pre OP:
SM 3mm C3-L1
Tonsillar Herniation 5mm due to TCS
TCS Surgery TCI 6-6-08
ICT 6-7-08

Post OP: 2011-MRI
CM 8mm
SM C2-C6 9mm

PFD done in May 2012
Arachnoiditis found
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Re: shunt surgery tomorrow

Postby MichelleW » Sat Nov 12, 2011 10:05 pm

Michelle didn't have as good of a day today and a bit of her optimism has faded. It appears that either the shunt or the acracnoid space is leaking fluid, causing lack of fluid around the brain. She is back to flat bed rest and now has headaches due to the negative pressure when upright. It looks like her hopes of being discharged early are gone, but she is much better this evening after a day of staying in bed.
SM C1 to T8 15mm wide
Subarachnoid shunt 9/9/09 FAILED
Syringopleural shunt @T1-2 18/11/09.
Syrinx collapsed even more, revealing SUBARACHNOID CYST at T5/6
2nd syringopleural shunt planned for 11/2011
MichelleW
 
Posts: 185
Joined: Thu Jun 18, 2009 12:09 am
Location: Moose Jaw, SK, Canada

Re: shunt surgery tomorrow

Postby Sueli » Mon Nov 14, 2011 2:03 pm

Dear Michelle,

Hang in there!! I wasn't online this weekend, so I just saw this post from saturday. It sounds a bit like a spinal headache. I hope it's better now, but it takes time and I think there are things they can do to help it. Anyway, hang in there! I know myself it's really hard to do when the struggle is everyday.

Hoping you are ok..

Sueli
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Re: shunt surgery tomorrow

Postby jfreema » Mon Nov 14, 2011 8:06 pm

Michelle,

I hope you feel better soon!
Jennifer
Pre-Op: SM C2-T4 (2mm C2 to C5, 6 mm C5 to T1, 2 mm T1 to T2, 7 mm T2 to T4), CM 8 mm
PFD surgery May 2010
Post-Op: Syrinx has completely disappeared - no evidence at all!
Surgeon: Dr. John Heiss at the NIH
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Re: shunt surgery tomorrow

Postby MichelleW » Mon Nov 14, 2011 11:30 pm

Michelle is still in the hospital and is still dealing with post-surgery problems. X-rays of her lungs show that the fluid is culminating there, which makes the scenario of the new shunt draining fluid faster than she can replenish it most likely. She has been assured that her body will eventually adjust and begin increasing the volume of CF she will now need. It will take time to prove if this is correct. Until then she will remain in bed, and only sitting upright for a few minutes at a time as this still causes strong low-pressure headaches for her. The good news is that these headaches are quickly relieved by laying back down. She will find out tomorrow if the bed rest will continue at the hospital or if they feel she is strong enough to begin the healing process at home. I will update when the decision is made.
SM C1 to T8 15mm wide
Subarachnoid shunt 9/9/09 FAILED
Syringopleural shunt @T1-2 18/11/09.
Syrinx collapsed even more, revealing SUBARACHNOID CYST at T5/6
2nd syringopleural shunt planned for 11/2011
MichelleW
 
Posts: 185
Joined: Thu Jun 18, 2009 12:09 am
Location: Moose Jaw, SK, Canada

Re: shunt surgery tomorrow

Postby reedy » Tue Nov 15, 2011 8:58 am

Good luck, Michelle. Its probably going to take a while for the system to balance out.

I had headaches for a week after surgery, and my surgery was not as big as hers. My main joy in that time was drinking coffee, which my NS said helps with CSF production!
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Re: shunt surgery tomorrow

Postby JOsgood » Tue Nov 15, 2011 6:46 pm

God speed Michelle. I haven't logged on in months. Hate to see you going through this again. Will be praying for your speedy recovery. I don't know if you remember me. You were one of the ones I talked to after my shunt surgery. It was the support of you and other board members who helped me through this scary process. Good luck. Jamie
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Re: shunt surgery tomorrow

Postby MichelleW » Fri Nov 18, 2011 10:13 pm

I am home.

Not feeling great, but I'm home.

The arachnoid cyst that they shunted was under a LOT of pressure and the shunt is over draining now. I had severe low pressure headaches on day 3 post op and was back on flat bed rest for day 3 through 5. I am slowly feeling better, but the low pressure headache has caused a lot of problems for me. And let me just say right now that I will never ever complain about a 'regular' headache ever again!!! Although, the NS feels that eventually my body will up the CSF production to counteract the drainage through the syringopleural shunt, the temporary low pressure has damaged the nerves in my ears and I am deaf on the right and hear constant low tone ringing in my head. It's driving me insane. And I have increased clonus and balance issues in my legs post-op, so I am using a walker and cane to get around now that I'm home.

I will see the NS in about 4 weeks for a followup and if the ear thing hasn't improved then, he'll send me on to an ENT specialist to see if anything can be done. In the mean time, I get to heal and try to recover more from this low pressure problem.

Thanks for all the well wishes... time to go lay down and relax for a while.
SM C1 to T8 15mm wide
Subarachnoid shunt 9/9/09 FAILED
Syringopleural shunt @T1-2 18/11/09.
Syrinx collapsed even more, revealing SUBARACHNOID CYST at T5/6
2nd syringopleural shunt planned for 11/2011
MichelleW
 
Posts: 185
Joined: Thu Jun 18, 2009 12:09 am
Location: Moose Jaw, SK, Canada

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