Hi, My name is Sarah,I am brand new to this type of chat room thing and new to CM/SM. I guess to start off, I am looking to see if their are any others on here from around my area? I live in a small town called Angola, Indiana. It is located in the northeast corner of Indiana. My house is about 10 mins from Michigan and 6 mins from Ohio. I have had symptoms(that I have gone to my PCP with) for 5 years. Now looking back at all the symptoms, I maybe have had issues for longer. Like most of you when I got the news,(on July 2nd 2010) I was soooo happy! I had just gone to my PCP that week and said OK doc, things are not getting better, in fact they are getting worse, so give me a medication for being crazy, and one last test. He granted me a brain MRI. My saving grace. I have a 5mm Chiari and in July of 09 they had found a syrinx(t4-t10) on a study I had had done for liver tumors that had been dicovered. Those are non-cancerous, only found by trying to find what was making me sick. No one ever put the symptoms and the syrinx together.
On July 19th 2010, my worst fear came true. My son Parker(7) has it. He is the only one out of my three children that had any sign. I have 2 girls also. Bella is 9 and Lily is 3. I pray that God has spared them. They only did a cervical spine MRI on Parker and saw the Chiari but no syrinx, however I believe his will be in the thorasic area also. He complains of pain mid back.
We both go to a Nuerosurgen, on August 17th.
This has been a real life buster. I am usually a really up-beat funny girl, but this as really been horrible. And I know like many say, it could be worse. And yes it could and many days i find myself saying that to myself and that picks my heart up alitte. But right now I and my husband are in a really bad spot. I will have to explain alittle so you will understand why, so bare with me as I gush on just the big things.....My baby Lily was born with a congenital heart defect and was at Riley Childrens Hospital at 7 weeks of age, getting her new life and heart fixed. That is my current husbands only child. Bella and Parker are form a previous marriage. He has been in their lives for over 6 years. So it was an extremely hard thing for us to go though. But we pulled together and got though it, and thought that was out test of faith and we survived.
Less then 9 months later my husband thought he was having a appenx attack and had a CT done of his abdomin and found out he had kidney cancer. This was a couple days before his 33rd bithday. On May 5th of 2008, he had part of his right kidney removed and was declared cancer free. Praise the LORD. He then joined a drug study and is still in that for 3 more years. So hopefully what he has gone though will bring forward a drug the prevents renal cell cancer. Now a little background on my husband, we actually went to school together for all of our childhood(he is 1 year older), we were boyfriend and girlfriend in the 7th grade and he was my first childhood kiss.
In highschool I dated and ended up mariing a guy from another school and that was an abusive marriage, but worth the children. So when our paths crossed again, I knew that we were soulmates and needed to be together. My husband had never married and had made a wonderful life for himself. He had known what he wanted to do as a career since highschool and made that happen. He is a Deputy Sherriff here in our county. He is only 35 and has been with the sheriif department in one way or another since highschool. I could not be prouder of him, he goes to work everyday and puts his life on the line. Another thing that we have been though that I share only with 3 of my closest friends is my oldest daughter has a mental illness that has been overwhelming at times. She has what her real father has and it causes her to rage on occation and like her father I end up beening the one she feels she can do it on. She goes back ond forth to extreme on how she feels about my current husband and that puts a strain on us. And her real father still continues to verbally abuse me any chance he can. ( he is however good to the kids, so for that I am thankful). All of witch put my current husband out of reach becuase of the career he has, he stays as far away for those two issues as possible. Which just shows me how great of an officer he is that he does not abuse his badge.Ok now to this....Sorry, I am a really open book person and want to give the whole picture, that is a fault of mine. So anyway for those of you who are still with me. I guess maybe I should give you and intermission. Feel free to leave your computer and use the restroom or hit the candy counter. LOL
Now here we are with one more of Gods tests. Yes I know that he will never give us more then we can handle, but ohlala I am at a breaking point. Because along with all the bigs things I have pointed out, we are still living everyday with all the everyday things happening around us. Kids, Bills, Ex-husbands, and pain. You get the picture. These last coulpe of weeks, getting familiar with CM and SM and all the emotions that are flooding in at every second, we are breaking down. We are at the point of a temperary separation. We both can not find it in ourselves to come together, I need him badly right now for a shoulder and a strong back, and he needs peace and everything to stop for just a moment so he can catch his breath. So we both need things that we can't give eachother and that is only adding to the stress of what we are facing and only takes my fears of this to another level.
So that is my story as it stand right now. I am sure at least one of you have been where I am and my have some advice to give. Thank-you so much for this site, i plan on tring to get on here as much as I can. I have heard that no-one but another Chiarian will ever understand what we go though. So thanks, just writing this has made me feel a little hope.
God Bless all, SarahPS sorry about the mis-spellings and other grammer mistakes, I blame it on Chiari!LOL
So in the time of our short marraige (we were married in 2006) we have been though hell and back.
