HAS ANYONE HEARD OF THIS DOCTOR

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HAS ANYONE HEARD OF THIS DOCTOR

Postby beachgirl » Mon Mar 17, 2008 7:17 pm

HI EVERYONE,

THANKS FOR ALL YOUR LOVE AND KIND WORDS....

TODAY WAS NOT A REALLY GOOD DAY...REALLY TIRED AND SLUGGISH, AND OF COURSE RUNNING AFTER A FIRST GRADER AND A TODDLER CAN TAKE A TOLL ON ANYONE!

THE NEUROLOGIST THAT I AM GOING TO SEE IN TWO WEEKS IS DOCTOR JAMES PACELLI IN LANCASTER PA. HAS ANYONE HEARD OF HIM, EITHER GOOD OR BAD? I KNOW THAT ALOT OF YOU ARE SAYING THAT I SHOULD ALSO CONSULT A NEUROSURGEON, WELL THE DOCTOR FIRST GAVE ME THE NAME OF A PROMINENT NEUROSURGERY PRACTICE HERE IN LANCASTER, AND WHEN I CALLED THEIM FOR AN APPOINTMENT THE OFFICE SAID THAT THEY ONLY HAD NEUROSUGEONS PRACTICING THERE AND THAT I NEEDED TO SEE A NEUROLOGIST FIRST TO DISCUSS SURGERY AND OTHER OPTIONS.

IS WHAT I AM TELLING YOU A NORMAL PRACTICE FOR SOMEONE THAT HAS JUST BEEN DX WITH CM?

I WOULD APPRECIATE ANY AND ALL COMMENTS AND INFO THAT YOU WOULD HAVE
beachgirl
 
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Postby angie7 » Mon Mar 17, 2008 7:33 pm

Just a friendly FYI, typing in all caps is hard to read and it comes across as yelling in the computer world...

How were you dx? Usually a NL makes the first dx so I'm curious as to who dx you? Also depending on your ins, it is the more 'formal' thing to see a NL first and then have him refer you to a NS.
Mama to 4 y/o ID twin girls (2006)
CM 0, C5-T1 syrinx, Scoliosis, Hypotension; PFD 2004
Deg Disc C4/5,Cervical Kyphosis-repaired 07 w cadavar bone graph & plate w 4 screws
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Sorry abot the caps

Postby beachgirl » Mon Mar 17, 2008 7:58 pm

Hi there,

Sorry about the all caps thing, typing is not really my thing, I do it all day at my job and by the time i get home, well...

This is how my story goes, and sorry if it is long winded. I have been seeing the same family doctor for about 4 years. I have been suffering with migraines since my college days. They are hereditary, my mom suffers from them, as did my grandma. My doc put me on some good migraine medicine (I cant remember the name right now but it was a pink chewable tablet that I took once a day). However my migraines increased in fequency and the medicine was not helping at all. This past December I came down with a migraine that lasted for four days. Nothing helped...I went into the doctors office and he gave me two shots, one to help with the nausea and another one for the pain. Needless to say they did nothing to alleviate the pain. I was in bed for about four days till it finally went away.

I guess that I should also mention that when I had these migraines I had alot of shooting pain down both sides of my head. It also started happening that I would start having shooting pains down the side of my head that would last for about 5-10 seconds. I could have 5-6 of these a day.

What really started to scare me was around the beginning of February I started to notice that I was forgetting simple things, like phone numbers and names of people I have known at both my job and my family. The names would come to me eventually, but it seemed like I had to "think" about it before I spoke or answered someone.

That really scared me so I made an appointment with my family doc who ordered an MRI. A couple of days later I got a call from his nurse saying that they had my results and that I had a Chiari Malformation, and the the doc would like me to see a neurologist....

So here I am. The memory thing seems to be getting worse in my opinon, and I am having nausea and vomiting at times as well as being tired.

Any advice that you have in this would be most helpful
beachgirl
 
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DR.

Postby razzle51 » Tue Mar 18, 2008 4:36 am

This Dr. is used alot in dealing with Chiari and SM you might want to check him out.

* Dr Ghassan K Bejjani
Greater Pittsburgh Neurosurgical Associates-UPMC
Aiken Professional building, Suite 311
532 South Aiken Avenue
Pittsburgh PA, 15232
Phone: 412-623-6910
Fax: 412-623-6911
http://www.neurosurgery-web.com/
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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good advice

Postby Sara » Tue Mar 18, 2008 6:39 am

yes, you might try dr. bejjani.
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Postby angie7 » Tue Mar 18, 2008 8:48 am

Since your family doc found it, then yes he would refer you to a NL, who then *may* refer you to a NS, its how the chain works.
Mama to 4 y/o ID twin girls (2006)
CM 0, C5-T1 syrinx, Scoliosis, Hypotension; PFD 2004
Deg Disc C4/5,Cervical Kyphosis-repaired 07 w cadavar bone graph & plate w 4 screws
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Postby SMLady » Tue Mar 18, 2008 9:39 am

Isn't it insane? Too bad you just can't go straight to a specialist without having to go through all the rigamaroe (sp?). I guess they have to do that to weed out certain things, but still. Not only is it a "pain" (no pun intended), but it isn't free!
Proud Mom of One Son
Idiopathic SM T1 - T9, DDD, Scoliosis, Pinched Nerves, Bulging Discs, Spondylosis, Stenosis
----------------------------------------------
The Man who walks with God always gets to his destination.
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Postby Janice » Tue Mar 18, 2008 10:59 am

Hi Beachgirl,

I'm sorry to hear about all the problems you're having right now.

My insurance (during the time of dx) worked the same way as yours, it seems. I have to see my PCP for anything that ails me. Depending on the outcome, the PCP then refers me to a specialist. If the specialist determines that surgery is required, s/he will then refer me to a surgeon.

Most HMO's work in this fashion. Once you see the NL, if it is then determined that you need to be seen by a NS, you should request to see Dr. Bejjani. You do need to make sure this doctor is in your network, just call the insurance and ask.

Take care,
GOD Bless!
Janice

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
Hemangioma's: T9-T11 & L4

http://janice-mylifewithsm.blogspot.com/ (Copy & Paste link into your browser)
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