newbie to this site

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newbie to this site

Postby smann » Thu Oct 11, 2012 1:36 pm

Hi all. I just wanted to introduce myself. I was diagnosed with chiari I about 10 yrs ago. I also have fibro and a whole host of other problems from head to toe. I live in NC and am 44 yrs old. I am looking forward to getting to know all of you. I hope this day finds you all as well as possible! :P
[img][/img] Susan
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Re: newbie to this site

Postby gunflint » Fri Oct 12, 2012 4:09 am

Weicome smann!
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Re: newbie to this site

Postby smann » Fri Oct 12, 2012 3:22 pm

Thank you gunflint.
[img][/img] Susan
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Re: newbie to this site

Postby bmxgirl » Wed Jun 05, 2013 9:46 pm

Hello all I was born with Arnold-chari. I had my first decompression when I was 18 month old. I have speech problem and I wear bracket on my legs. I had second decompression when I was 14. I am 27 now. I live in NC. I would love to talk to people who knows what I am going through.
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Re: newbie to this site

Postby passmass » Wed Jun 05, 2013 11:00 pm

Welcome aboard. I am 46, diagnosed March 10, 2004 , with Sm 3 days after My first problems. Since have been diag. with CM0, SM, Fibro, Dethered 2007, fusion C4-5, C5-6. Elhers Danlos.
Thanks Passmass
EDS, SM C5-T2, CM, DDD, De-Tethered (Jan. 07), Fibromyalgia, Central Sleep Apnea, Central Pain Syndrone
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Re: newbie to this site

Postby passmass » Thu Jun 06, 2013 12:13 am

Hi and Welcome,
I am a 46 yr old male, I first started having problems March 7, 2004. Found my Syrinx on March 10. Have had fusion of C4-5, C5-6 in neck.(C6-7) next. Was dethered Jan 2007.
SM, CM0, Elhers Danlos Syndrone, Chronic Pain Syndrone, Fibromyelia, Sleep Apnea, Degenerative Disc Disease.
Welcome aboard!!!
Passmass
EDS, SM C5-T2, CM, DDD, De-Tethered (Jan. 07), Fibromyalgia, Central Sleep Apnea, Central Pain Syndrone
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Location: Mississippi

Re: newbie to this site

Postby hotsauceman » Thu Jun 06, 2013 4:14 am

Welcome, I'm also from NC.
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Re: newbie to this site

Postby karenb » Mon Jul 01, 2013 11:54 pm

Welcome, smann!

Sorry I haven't welcomed you earlier... I've been taking a hiatus of sorts...

Feel free to ask any questions you need to here - I hope you've learned by now that there is no such thing on this site as a stupid question, and all are welcome!

Karen
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Re: newbie to this site

Postby marymac » Tue Jul 09, 2013 8:13 am

Hi Ho Smann

Sorry I'm so late in welcoming you, don't come on the board like I used to. Hope you've gotten to know a few of us, we're a wild bunch let me tell ya, and all have unique problems, so don't be shy. . .. the only "dumb" question is the one not asked! Seriously, we talk about EVERYTHING so don't hesitate. So I'm older than you are and live in Florida. The rest is under my signature, and I'm awaiting a 2nd decision from Disability, as I was denied the 1st time just like everybody said I would be. Hope you're having the best day you can.
Sunshine & fake smiles
Mary
Marymac
Central disc herniations C5-6 and C6-7, extensive syringohydromyelia cavity throughout the cervical & thoracic cord (large syrinx from C6 inferiorly.)

"Every day is a gift: Thats why it's called the Present"
User avatar
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Re: newbie to this site

Postby syrinx48 » Tue Jul 09, 2013 11:08 am

Hi Smann,

Welcome to this forum. A bit late. I hope that in the meantime you could have read a lot on information. If you have a question don't hesitate to ask, hopefully this site will become more lively again! We will all try to do our best. As you can see I am from the Netherlands, so English is not my native speech. I will sometimes make some mistakes......

Annemarie
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Re: newbie to this site

Postby davidcalleo » Wed Nov 06, 2013 12:02 pm

I am a newbie too. Have a cyst at T12 thru T 4. Not sure if they should drain this or leave it there. Anyone have the same choice?
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