I feel like screaming, crying and pulling my hair out!...I really could just explode with frustration at the moment.
I have syringomyelia, no chiari. my cysts are at C4-7 2x1.4mm at the level of mid C6 vertebra. Also at T3-T5 3cm in length, maximal dimensions are 4x3.9mm. I really don't know what that all means, but they are there.
After 4+ months of being symptom free I have recently had a relapse. I feel like no ones wants to blame syringomyelia. My neurologist, which I haven't seen for several months thinks it's all in my head, my Neurosurgeon who I also haven't seen for several months thinks the syrinxs are too small to cause any symptoms. Most upsetting of all is my husbands opinion. I had a parasitic infection last year and he thinks that's at the root of all my health issues because I don't look after myself. I'm 159 and 80kgs and I don't exercise...I'm allergic to it! I agree that I'm overweight but I'm no couch potato.
It's all so frustrating, I feel like my world has collapsed around me in the space of a few weeks. Once the kids are all grown up I really can't see him hanging around. I think I'd rather be on my own than have to be something that I'm not.
Thanks for taking the time to read.
Danielle x