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Don and Barbara White started ASAP as a
grass roots organization in their spare bedroom due to the frustration
they encountered when Barbara was first diagnosed. Since then ASAP has become a nationwide clearinghouse
for information regarding Chiari (CM) and syringomyelia (SM) and
related disorders. ASAP sponsors an annual medical conference linking
the top medical professionals in the field with those affected. ASAP
reviews and funds research annually. In addition, they promote
awareness by hosting community fundraisers throughout the nation.
Together with its membership, ASAP works toward fulfilling its mission
to improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the
cure.
Our Vision
We envision a world without the devastating effects of syringomyelia , Chiari Malformation and related disorders.
Our Values
Customer Focus: Our attention and service is
aimed at all our stakeholders. Of primary importance are those people
affected by syringomyelia, Chiari and related disorders, which includes
persons and their families affected by the diagnosis as well as health
care and scientific professionals.
Hope: ASAP will find a cure for syringomyelia and Chiari.
Credibility: ASAP was the first organization
people could go to for support and reliable information specifically
about syringomyelia and Chiari. ASAP's history since 1988 speaks for
itself—when a person lives with the daily challenges of SM/CM,
ASAP will continue to be there.
Integrity: An unwritten moral code guides the organization in truth and
honor.
Communication: We provide clear, open channels in
which to correspond, be it in person, by phone, by mail or by email. We
will, at times, initiate such correspondence. We will always respond to
such correspondence.
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