2009 Chiari/Syringomyelia Conference Agenda: July 15-18

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* Agenda subject to change without notice

Return to top        Wednesday, July 15
6:30 pm Registration Check in at the registration table and pick up your conference materials
7:00-9:00 pm Welcome Reception
 Enjoy appetizers while you meet and greet fellow conference attendees
Return to topThursday, July 16
8:00-9:00 am Continental Breakfast
  
8:30-8:45 am
Breakfast Seminar 		Meet the ASAP Board

 		ASAP Board of Directors
8:45-9:00 am
Breakfast Seminar		 Peer to Peer: Gretchen Mueller shares her CM/SM story.Gretchen Mueller
Module 1: Basic Reviews of Chiari and Syringomyelia
9:00-9:20 am The Chiari Malformations: Definitions, Concepts and Treatments

Timothy George, MD
Medical Director of the Pediatric Neurosurgery Center of Central Texas at Dell Childrens Hospital

9:20-9:35 am Syringomyelia: Definitions, Concepts and Treatment Bermans Iskandar, MD Director Pediatric Neurosurgery Program, Univ of WI- Madison, WI
9:35-9:45 am Question and answer covering basic concepts George/Iskandar
9:45-10:05 am A Diagnostic Methodology for the Evaluation of Chiari I Malformation Roger W. Kula, MD
Medical Director of the Chiari Institute, Great Neck, NY
10:05-10:25 am Case Discussion: Basic Presentation Physicians Panel: Neurosurgeons & Neurologists
10:25-10:40 am Break  
Module 2: Associated Clinical Problems
10:40-11:00 am Audio-Vestibular Dysfunction Associated with Chiari I: A review Burke Richmond, MD
Medical Otolaryngology
Assistant Professor in Family Medicine
11:00-11:20 am Sexual Dysfunction and Urological Problems John V. Kryger, MD
Associate Prof of Urology, Program Director Univ of WI- Madison
11:20-11:40 am Neuropsychological Issues Bruce P. Hermann, PhD
Prof of Neurology, Director of the Charles Matthews Neuropsychology Lab at the Univ of WI-Madison
11:40-12:00 pm

Rehabilitation and Independence

Michael Ward, MD  

Assistant Professor of Rehabilitation Medicine, Univ of WI-Madison
12:05-12:45 pm

Ask the Panel: Putting it all together. How to make sense of everything.

Deb McLeish, MD & Patient Panel:  Jennifer Rehm, Tom and Jenny Frank, Gretchen Mueller
12:45 - 2:30 pm Lunch Break On your own
Workshops: Participants select from a variety of workshops
Time Room #1 Room #2 Room #3
Session 1
2:30-3:15 pm 		Visual guided imagery, distraction and biofeedback

Come learn how these therapies could improve your ability to cope with chronic pain and stress.
Joel Wish, Ph.D.
Kathryn M. Hammes, Ph.D.

Anatomy
Overwhelmed by all these anatomy terms? Come and learn about brain and spinal anatomy! Real models.
Nirav Patel, MD
Solomon Ondoma, MD 
 School Issues  Come and learn the facts about individual educational plans, 504 plans and much more.

Karen Carpenter, MS, CRC
Kyle McClean, RN, MS, CPNP, APNP
Session 2
3:20-3:55 pm 		Explore Physical and Occupational Therapy
Come and find out how PT and OT can help improve your functioning.

Natalie Hagen, PT
Cindy Spetz, OTR, CHT 		Injured Bystander
Special session for family, friends and caregivers.  Share and learn coping strategies.
Heidi Beckman, Ph.D.
Clinical Psychologist, Department of Health Psychology, UW Hospital and Clinics
 Social Security
Learn the ins and outs of the social security program.
Bob Hunt
Section Chief Disability Determination Bureau
Connie Da Valt
Madison Social Security office
Session 3
4:00-4:45 pm 		Intro to Acupuncture
Dr. Mihal Davis, ND, LAc
Dr of Naturopathic Medicine (Licensed Acupuncturist)
Dealing with a Chronic Illness
Special session for patients. Come and share with others and learn new coping strategies.
Heidi Beckman, Ph.D. 		Volunteer Opportunities at ASAP
Want to get more involved?  Let us help you find the right volunteer opportunity for you!
Michael Scarpone, MS
Return to topFriday, July 17
8:00-9:00 am Continental Breakfast  
8:30-8:45 am
Breakfast Seminar 		Peer to Peer: Brian Martin shares his remarkable story of overcoming paralysis.

Brian Martin
Module 3: Complex and/or Controversial Problems
8:45-9:05 am Goals and Objectives for Complex and Controversial Problems Discussion Ulrich Batzdorf, MD
Professor of Neurosurgery and Director of Spine Surgery
David Geffen School of Medicine at UCLA
9:05-9:25 am Occult Spinal Dysraphism and the Tethered Cord Syndrome  W. Jerry Oakes, MD
Prof of Pediatric Neurosurgery, Surgeon-in-Chief at Children's Hospital of AL, Univ of AL 
9:30-9:50 am Complex Chiari: To fuse or not to fuse  Arnold H. Menezes, MD
Professor and Vice Chairman
Department of Neurosurgery,
Univ of Iowa 
9:50-10:10 am Scoliosis: Diagnosis and Treatment James McCarthy, MD
Orthopedic surgeon
Univ of WI-Madison
10:10-10:30 am Case Discussion
 		 Physician Panel
10:30-11:00 am Question and Answer
 Physician Panel
11:00-11:15 am Break  

Module 4: Pain

11:15-11:30 am Pain Definitions and Mechanisms
Miroslav
Backonja, MD
Professor Neurology, Anesthesiology and Rehabilitation Medicine
11:30-11:50 am Pain and Syringomyelia Angela Mailis-Gagnon, MD Director, Comprehensive Pain Program, Professor, Dept. of Medicine, Univ of Toronto
11:50-12:00 pm Case Discussion
 Physician Panel
12:00-12:30 pm Question and Answer: Pain
 Kula/Backonja, Mailis-Gagnon
12:30-2:00 pm Lunch Break On your own
Module 5: Clinical Research I
2:00-2:20 pm Intraoperative Ultrasound Techniques: Indications and Results  Paolo A. Bolognese, MD Associate Director of the Chiari Institute, Great Neck, NY 
2:20-2:35 pm Measuring Outcomes After Chiari Decompression for Syringomyelia
  		Nicholas Wetjen, MD
Assistant Prof of Neurosurgery
Mayo Clinic
Rochester, Minnesota  
2:40-2:55 pm Neuropsych Issues in Patients with Chiari/SM


 David Frim, MD
Professor of Surgery and Pediatrics, Chief of Neurosurgery, Univ of Chicago Comer Children's Hospital
3:00-3:15 pm Trends in the Surgical Treatment of Chiari I/ Syringomyelia in North America: Results of a Survey of the American Society of Pediatric Neurosurgeons Brandon Rocque, MD
Neurosurgical Resident, Univ of WI-Madison
3:15-3:35 pmGenetics Research and Techniques: Review Allison Ashley-Koch, PhD
Associate Professor Medical Genetics,  Duke University
3:35-3:50 pm Canine Chiari & Syringomyelia
Dominic Marino, DVM
Chief of Staff
Long Island Veterinary Specialists
3:50-4:20 pm Question and Answer Physician Panel
Return to top      Saturday, July 18
8:00-9:00 am Continental Breakfast  
8:30-8:45 am
Breakfast Seminar		 Peer to Peer: CM/SM: A Family Affair LeeAnn Leske
8:45-8:55 am
Breakfast Seminar 		Meet ASAP's CEO  Michael Scarpone, MS
Module 6: Pediatric Issues
9:00-9:20 am Hydrocephalus and Shunts
A. Leland Albright, MD
Univ of WI-Madison
9:20-9:40 am Incidental Chiari I in Children
 Robert Keating, MD
Chief of Neurosurgery
Children's National Medical Center, Washington, DC
9:40-10:00 am The Patient and Family Experience to Hospitalization and Illness 
 Mary Kaminski
Director of Patient and Family Services, Univ of WI- Madison
10:00-10:30 am Pediatric Case Discussion
and  Q & A 		Pediatric Panel
10:30-10:50 am Ocular Manifestations of Chiari in Children and Adults Michael Struck, MD
Associate Professor
Pediatric Ophthalmology
Univ of WI-Madison
10:50-11:00 am Break  
Module 7: Clinical Research II
11:00-11:20 am

MRI Research and Techniques: Review

Victor Haughton, MD
Professor Neuroradiology
Univ of WI- Madison
11:20-11:40 am

Mechanical/Computer Models Research and Techniques: Review Frank Loth, PhD
Associate Professor of Mechanical Engineering, Univ of Akron, Akron, OH 
11:45-12:05 pm

The Origin of Syrinx Fluid

John D. Heiss, MD
Head, Clinical Unit, Surgical Neurology Branch, NINDS, NIH, Bethesda, MD
12:05-12:25 pm Failed Chiari I Malformation:
A Review
 Ghassan Bejjani, MD
Univ of Pittsburgh Medical Center, Pittsburgh, PA
12:25-12:45 pm Question and Answer  Physician Panel
Module 8: Central Nervous System Healing: Review of Basic Research Concepts
2:10-2:20 Introduction and ASAP Study Update Dan Kolk
Director, Office of Clinic Trials Univ of WI
2:20-2:40 pm Nervous System Regeneration and Repair

 Raghu Vemuganti, PhD Associate Professor, Univ of WI-Madison
2:40-3:10 pm Stem Cells Paul Clark, PhD
Univ of WI Stem Cell Research Program Postdoctoral Research Fellow
3:10-3:30 pm Case Discussion  
3:30- 4:00 pm Question and Answer Research Panel
6:00-7:00 pm Cash Bar Have a drink and socialize before the banquet.
7:00 pm Dinner Banquet and Concert   Come and enjoy the festivities! A gourmet dinner will be served alongside lots of fun and laughter.  Bid on auction items and find out if you are a lucky raffle winner!
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