| Return to topWednesday, July 23 |
| 6:30 pm |
Registration
|
Check in at the registration table and pick up your conference materials |
| 7:00-9:00 pm |
Welcome Reception
Atrium
|
Enjoy appetizers while you meet and greet fellow conference attendees |
| Return to topThursday, July 24 |
| 8:00-9:00 am |
Continental Breakfast
|
|
| 8:30-9:00 am |
Breakfast Seminar:
Meet the ASAP Board
|
Come and meet the ASAP Board of Directors while you eat! |
| 9:00-9:30 am |
Chiari and Syringomyelia: Introduction and History of Treatment Methods |
W. Jerry Oakes, MD
Professor
of Pediatric Neurosurgery, Surgeon-
in-Chief at Children's Hospital of
Alabama, Univ of AL at Birmingham Medical School,
Birmingham, AL |
| 9:30-10:00 am |
Pain Management in Patients with Chiari I and Syringomyelia |
Ann Berger, MD, MSN
Head of the Pain Service, NIH Clinical Center, Bethesda, MD |
| 10:00-10:30 am |
Ins and Outs of Social Security Disability |
TBA |
Children's Program
10:00-12:30 pm
|
Kids 6 and up- join us in a separate room for fun and crafts with a pizza lunch from 12:00- 12:30 |
Kids For A Cure Club
|
| 10:30-11:00 am |
Break |
|
| 11:00-11:30 am |
The Tethered Cord Syndrome |
John J. Oró, MD
Neurosurgery Center of Colorado, Aurora, CO |
| 11:30-12:00 pm |
Treatment of Chiari and Syringomyelia in Children |
Robert Keating, MD
Chief of Neurosurgery, Children's National Medical Center, Washington, DC |
| 12:00-12:30 pm |
Q & A with the Physician Panel |
Research and Physician Panel |
| 12:30-2:00 pm |
Lunch Break |
On your own |
| 2:00-4:00 pm |
Breakout Sessions |
Participants
will divide into three discussion rooms: Patients, Parents, Family and
friends. Each group will have a moderator. |
Children's Program
2:00-4:00 pm |
Ages 6 and up: Breakout session - Coping Mechanisms in Children with Chiari and/or Syringomyelia |
Facilitated by Terry Spearman, Child Life Specialist, Children's National Medical Center, Washington, DC |
| 4:15-4:45 pm |
TBA |
|
| 6:00-10:00 pm |
Optional Dinner Cruise *additional cost-not included in registration fee |
Spirit Cruises |
| Return to topFriday, July 25 |
| 8:00-9:00 am |
Continental Breakfast |
|
| 8:30-9:00 am |
Breakfast Seminar:
ASAP: Looking Forward |
Dick Hellner
ASAP's Chief Executive Officer |
| 9:00-9:30 am |
Association of Chiari malformation Type I and tethered cord syndrome: preliminary results of sectioning the filum terminale |
Paolo A. Bolognese, MD Associate Director of the Chiari Institute, Great Neck, NY |
| 9:30-10:10 am |
Scoliosis and Other Deformities in Chiari I and Syringomyelia |
Douglas Brockmeyer, MD Professor of Neurosurgery, Univ of Ut, Salt Lake City, UT |
| 10:10-10:30 am |
Break |
|
Children's Program
10:15-12:00 pm |
Special activities for kids ages 6 and up- join us in a separate room and enjoy some one-on-one time with puppies! |
Kids For A Cure Club |
| 10:30-11:00 am |
Update on the ASAP-Sponsored Clinical Trial of Craniocervical Decompression for Chiari I and Syringomyelia |
Bermans Iskander, MD Director Pediatric Neurosurgery Program, Univ of WI, Madison, WI
Timothy George, MD
Chief of Service of the Pediatric Neurosciences and Neurosurgery at the Dell Children's Medical Center, Austin, TX |
| 11:00-11:30 am |
Research Models of Chiari I Malformation |
Timothy George, MD
Chief of Service of the Pediatric Neurosciences and Neurosurgery at the Dell Children's Medical Center, Austin, TX |
| 11:30-12:00 pm |
How a Service Dog Can Enhance Your Life |
Canine Companions for Independence
Including a live demonstration |
| 12:00-2:00 pm |
Lunch Break |
On your own |
| 2:00-2:30 pm |
Techniques and Problems of Craniovertebral Fusion for Craniocervical Instability and Hindbrain Herniation |
Arnold H. Menezes, MD Professor and Vice Chairman, Department of Neurosurgery Univ of Iowa, Iowa City, Iowa |
| 2:30-3:00 pm | Findings from ASAP sponsored research study: Investigation on the pathogenesis of post-traumatic syringomyelia | Christopher B Shields, MD
Professor and Chairman, Univ of Louisville Health Sciences Center,
Norton Hospital Endowed Chair, Kentucky Spinal Cord Injury Research
Center Clinical Director |
| 3:00-3:30 pm |
Urological Issues in Patients with Spinal Cord Dysfunction |
Toby Chai, MD
Professor of Surgery, Division of Urology, Univ of Maryland Medical School, Baltimore, MD |
| 3:30-4:30 pm |
Q & A with the Physician Panel |
Research and Physician Panel |
| Return to topSaturday, July 26 |
| 8:00-9:00 am |
Continental Breakfast |
|
| 8:30-9:00 am |
Breakfast Seminar:
30 Ideas in 30 Minutes
Join an interactive session where the audience is the expert.
We will formulate 30 ideas for managing daily life with a
chronic illness. |
Hosted by Sara Patterson
ASAP BOD, Program Committee Chair
|
| 9:00-9:30 am |
Engineering Analysis of Syringomyelia |
Frank Loth, PhD
Associate Professor of Mechanical Engineering, Univ of Akron, Akron, OH |
| 9:30-10:00 am |
Headache in Patients with Chiari I Malformation and its Response to Surgery |
Charles Sansur, MD MS
Univ of Virginia Department of Neurosurgery, Charlottesville, VA |
| 10:00-10:30 am |
Break |
|
| 10:30-11:00 am |
Selective Cognitive Abnormalities Underlie Patient Complaints of "Brain Fog" in Chiari I Malformation |
Roger W. Kula, MD
Medical Director of the Chiari Institute, Great Neck, NY |
| 11:00-11:30 am |
Intracranial Hypertension (Pseudotumor Cerebri) and Hydrocephalus in Chiari I Patients |
Ghassan Bejjani, MD
Univ of Pittsburgh Medical Center, Pittsburgh, PA |
| 11:30-12:00 pm |
Genetic Studies of Chiari I Malformation |
Joan E. Bailey-Wilson, PhD
Head, Statistical Genetics Section, Co-Branch Chief, Inherited Disease
Research Branch, National Human Genome Research Institute, National
Institutes of Health, Baltimore, MD |
| 12:00-12:30 pm |
Q & A with the Physician Panel |
Research and Physician Panel |
| 12:30-1:30 pm |
Lunch Break |
On your own |
Children's Program
1:25-3:00 pm | Share Time for Kids ages 6 and up | Kids For A Cure Club |
| 1:30-2:00 pm |
CSF Flow Studies in Patients with Chiari I and Syringomyelia |
Matthew McGirt, MD
ASAP Monkton Institute CNS Fellowship Recipient, Johns Hopkins Univ Department of Neurosurgery, Baltimore, MD |
| 2:00-2:30 pm |
Primary Spinal Syringomyelia |
John D. Heiss, MD
Head, Clinical Unit, Surgical Neurology Branch, NINDS, NIH, Bethesda, MD |
| 2:30-3:00 pm |
Q & A with the Physician Panel |
Research and Physician Panel |
| 6:00 pm |
Cocktail Hour- cash bar |
|
| 7:00 pm |
Closing Dinner Banquet, Auction and Raffle |
Join ASAP’s 20th Birthday festivities including a special tribute to our history and co-founder, Don White. |
| Return to top |
