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Our Mission

To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure.

In The News

Outcome Studies

Bermans Iskandar, MD More »

ASAP’s L.E.A.R.N. Points Program

In our quest to always do more for the people in our community. This program will make our ASAP national conference available to anyone interested in attending. Every year since 1989 the ASAP national conference has been an invaluable resource for those who attend. Attendees have the pleasure of hearing about the latest [...] More »

Genetic Causes of Chiari

Genetic and Other Causes of Chiari I Malformation Presented by Dr Simon Gregory, Associate Professor at Duke University Center for Human Genetics now.  Click on name to download Duke Genetic Study brochure More »

Albemarle, NC Walk and Roll

Over 100 people registered to walk at City Lake Park in Albemarle North Carolina on September 3. Special thanks to walk coordinator, Tammy Helms for an exceptional job. More »

Greenfield Indiana walk

The Tutrow family held the second Greenfield Walk & Roll on June 11. The walk raised over $3,500 and brought awareness about Chiari and syringomyelia to thousands. More »

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